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Fatigue On Revlimed
A MyMyelomaTeam Member asked a question 💭

I’m taking revlimed and 2chemo shots. I feel so overmedicated unsteady weak basically I would rather sit all day than get up and move around. Is that normal fatigue is really effects my daily like. I only go out once a week for treatment. I’m just comfortable at home. Any thoughts

posted June 27, 2022 (edited)
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A MyMyelomaTeam Member

Hi Kim, I am also a newbie to the treatment regimen. Finishing my second week today. I take 25mg Revlimid for 14 days, then seven off, with a weekly Valcade shot & Dexa Steroids 40mg the day of the shot. Yes the fatigue has been a challenge. I am anemic and the cancer was keeping my body from getting enough oxygen, which added to the fatigue. I started on day one to journal my day to include, symptoms, feelings, nutrition, exercise, while also keeping track of the meds taken each day and what time. For me the hardest is the Dexa steroids. Like you they do give me an energy boost, but I do not sleep well or enough and although the next day I am tired I am to pumped to nap. this I believe also adds to the fatigue as rest is part of the balance equation I seek. What I have found is even when I am fatigued I push myself to move a little. I crank up some oldies, rock, country or whatever fits the mood to get my groove on. Mind you I started very slow, a couple minutes was all I could do at first. I am now up to two 20 minuet walks a day !! I have also added some very light exercises. A friend suggested some deep breathing techniques which I have also incorporated. I am seeking balance in the areas of the mind, body, and soul to include exercise, nutrition, meditation, rest, and time spent with friends and family as normal as my new normal can be. Of course as I said I am a newbie and the challenges that we face are not at all static so I know that the balance I seek will be an on going, and most likely, in need of tweaking. I wish you the best Kim.... and hey girl get your groove on !!!

Larry 5

posted July 1, 2022
A MyMyelomaTeam Member

Revlemid is a chemo drug as I understand it

posted July 3, 2022
A MyMyelomaTeam Member

Larry our stories aren’t much different. I’m on 15 of revlimed for 3 weeks and I off. I enjoy the energy for the 2day buzz I get. That’s when I get my housework and fish tank cleaned cuz after that I can only do small things

posted July 3, 2022
A MyMyelomaTeam Member

Yes

posted July 3, 2022

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