Hss Anyone Had Any Issues With Their Creatinine Levels While Combating SMM? | MyMyelomaTeam

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Hss Anyone Had Any Issues With Their Creatinine Levels While Combating SMM?
A MyMyelomaTeam Member asked a question 💭

I just got my test results for my bi-monthly blood work and my creatinine level is now outside the normal range. Should this be a concern? I have a appointment with my oncologist and I thought I should bring this up to ease my tensions regarding any kidney issues.

posted June 14, 2022
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A MyMyelomaTeam Member

Mine is just a little high, out of the last 7 blood test test it was high 6 times. Normal what I have written down is 0.44 - 1.03 mg/dl, my last one was 1.17. my oncologist doesn't seem to be concerned yet.

posted June 14, 2022
A MyMyelomaTeam Member

I find a speciallist is good, he only deals with myeloma , which is relatively rare, and my regular oncologist deals with all cancers.

posted July 3, 2022
A MyMyelomaTeam Member

A myeloma specialist is necessary with this disease. I have a regular oncologist and a specialist I see every 6 months. My specialist says if a doctor has a problem with you getting a second opinion, it's time to get another doctor. Keeping up with myeloma treatment is too much for a regular oncologist. 💜💗💕

posted June 14, 2022
A MyMyelomaTeam Member

Phenighan, kidney function is a major blessing. You are right to keep an eye on your creatinine. Make sure you aren't taking any drugs that can hurt your kidneys. For sure talk about it with your oncologist. Is he/she a myeloma specialist? It is highly recommended that we all see one. Drink lots of water. Love Donna 💜

posted June 14, 2022 (edited)
A MyMyelomaTeam Member

He is not a myeloma specialist. He specializes in hematology. He is more fixated on treating my anemia and not addressing my other health issues like the fatigue, erratic blood tests and neuropathy until I get upset with him. I have been toying with the idea that after my next appointment, at a minimum get a second opinion of what he has done thus far and make a decision. I honestly can't continue with the constant decline of my quality of health with no plausible course of action.

Thanks for the feedback and support!!👏🏻🙂

posted June 14, 2022

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