How Do You Cope With Relapsing? | MyMyelomaTeam

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How Do You Cope With Relapsing?
A MyMyelomaTeam Member asked a question šŸ’­
posted May 13, 2022
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A MyMyelomaTeam Member

Eric, I had Stem Cell Therapy in 2019 and relapsed a year and a half later. My Oncologist suggested I get into a Car T Therapy Clinical Trial which I did. I have been in remission again for a year and three months. My only other option was Standard of Care, so I took the chance. No cure for MM but they can extend your life. Who knows they may find a cure during the time you have been extended. Good luck

posted May 13, 2022
A MyMyelomaTeam Member

I had active Light Chain myeloma with tumors on my ribs and lesions. I also had high calcium and was near kidney failure. I also had kyphoplasty to repair damage to my spine. Medication I was on were standard of care kyprolis, Pomalyst and revlmid also valcade.

posted May 21, 2022
A MyMyelomaTeam Member

What type of MM did you have and what were your past SCT medication?

Thank you for sharing your healing and hope!

Best

Susan

posted May 21, 2022
A MyMyelomaTeam Member

Good advice. Sorry about sude effects and relapse was so quick for Eric. I had stem cell and follow up chemo for a few years. My mm has been dormant for 11 years. Not looking forward to relapse and not sure i will pursue treatment. The break from chemo is nice. I hope everyone can enjoy thosr chemo free days!

posted May 21, 2022
A MyMyelomaTeam Member

Read my story I did have side effects talk to your Oncologist he or she can give you answers if not satisfied then find one that will.

posted May 14, 2022

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