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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Cope With Relapsing?

A MyMyelomaTeam Member asked a question šŸ’­
San Francisco, CA
May 13, 2022
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A MyMyelomaTeam Member

Eric, I had Stem Cell Therapy in 2019 and relapsed a year and a half later. My Oncologist suggested I get into a Car T Therapy Clinical Trial which I did. I have been in remission again for a year and three months. My only other option was Standard of Care, so I took the chance. No cure for MM but they can extend your life. Who knows they may find a cure during the time you have been extended. Good luck

May 13, 2022
A MyMyelomaTeam Member

I had active Light Chain myeloma with tumors on my ribs and lesions. I also had high calcium and was near kidney failure. I also had kyphoplasty to repair damage to my spine. Medication I was on were standard of care kyprolis, Pomalyst and revlmid also valcade.

May 21, 2022
A MyMyelomaTeam Member

What type of MM did you have and what were your past SCT medication?

Thank you for sharing your healing and hope!

Best

Susan

May 21, 2022
A MyMyelomaTeam Member

Good advice. Sorry about sude effects and relapse was so quick for Eric. I had stem cell and follow up chemo for a few years. My mm has been dormant for 11 years. Not looking forward to relapse and not sure i will pursue treatment. The break from chemo is nice. I hope everyone can enjoy thosr chemo free days!

May 21, 2022
A MyMyelomaTeam Member

Read my story I did have side effects talk to your Oncologist he or she can give you answers if not satisfied then find one that will.

May 14, 2022

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