I am in my 5th cycle of VRD and am working full time. I am struggling with the fatigue and brain fogginess, difficulty concentrating… I just don’t feel as mentally sharp as I used to. Do others experience this and if so any tips?
Abdulhallim, I agree with you I do as much as I can, I take a short nap and do a little more.😊
As DonnaAndrew said, fatigue is the number one side effect... which I believe is caused by both the disease, as well as, treatments. And yes, exercise does help when you can muster up the willingness to do so. I find it's easier if you do something that you love. For me that is gardening.
Today, started out as another day of fatigue and after the usual morning scheduled tasks & obligations (morning prayer, cat duties, blow out the front of my house) I just wanted to go back and lay down as I just couldn't shake the fatigue sufficiently. But fortunately I looked out my bedroom window down at the garden below with the sunlight shining on the lake just a few yards away from the back garden bed... and felt compelled to go out, so made myself go back out to start getting that area of my garden in shape for the Spring. To be honest, it felt awesome even if I was aching and winded by the time I was done 3 hours later, at least I was able to accomplish exactly what I wanted. By that time I was stiff all over and could barely make it upstairs to shower, pray and eat lunch prepared by my brother. The rest of the day was even more fatigued but I was content that I was productive on my own terms.
So, in closing... fatigue is very much a part of the landscape of Multiple Myeloma both before and after SCT but it doesn't have to have the final word, we can chose the narrative.
Hope you have better tomorrows!
Fatigue is the number one side effect. Exercise does help. I was on disability from my work during induction. I decided to retire early. I was a nurse. It does get better after transplant and once you get to maintenance. I know work is stressful, but it's probably nice to have something to think about besides myeloma. Hang in there 💗💜
i get this brain fogginess some time i forget where i am going
Welcome Leah!