Quick Links
Resources
About MyMyelomaTeam
Powered By
I am now in Active MM and it is escalating at an alarming rate. My light chain ratio went from 80% to 182% in 4 weeks. All the other numbers are also going crazy. I start chemo Tuesday. I will be on the following:
Daratumad, Velcade, and Cyclophosphamide. Any advice would be greatly appreciated.
Laurie,
People confuse “Never, ever give up, with Never lose faith.” I like to think that as each day starts, I’m one step closer to Paradise, so I better start tidying up.
No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more
@A MyMyelomaTeam Member Having high IgA, your question interested me enough to look it up. Here's a link to an article although I'll freely admit I understand about 10% of it at best. Yes, there are… read more
Original diagnosis of lambda light chain myeloma but in remission after stem cell transplant
Cathy the light chain ratios are hard to understand. They can go up and down some too. I think they are more concerned with the pattern from month to month. All the best, Doloresđź«‚
I’m sorry you are dealing with myeloma
I can only be grateful for how much research has been done and the success they’ve made in treating myeloma just in the past 5-10 years
Sending you love and… read more
Hello all! I hope everyone is doing well. I’m wondering if my work career had anything to do with my issues. I worked as a R&D lab technician for 27 years and as a chemical operator for 7. The lab tech job had me working with toluene di-isocyanate, amine catalysts, styrene, ethylene oxide, propylene oxide, and other chemicals. My operator job at the plant dealt with producing pesticides. In that job, I worked with sulfur di-chloride, methomyl, pyridine, and methanol
The lab tech job comprised… read more
I did a ton of reading on this when I first got diagnosed with MM. I'm a carpenter and on the high risk list. The medical and scientific world conclude MM can't be said to be genetic, and they don't… read more
So far I was the youngest at diagnosis, but longest living post-diagnosis. My brother was diagnosed almost a year after me, but died less than 2 months after his SCT. I will be 4years post SCT May 21… read more
How long does it take for MGUS to progress to Multiple Myeloma
After watching some of Dr Brandy’s talks online, I was amazed at how smart he is. He has MM too and is doing quite well.
Hello my dear friends
Has anyone else had this problem? If so what was the treatment.
I want you to know what a comfort you all are to me I feel so blessed having my MM club. Have a lovely weekend xx
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
