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Top 10 Search Results for "myeloma awareness how to get involved"

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How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question 💭

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

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A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

I Have MGUS What's Criteria To Say Its Multiple Myeloma ?
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Thank you Thank you Donna Andrew

I Have Just Been Diagnosed With Smouldering Myleoma. I Also Have Appts In January To Have Cataract Surgery. Is It OK To Get Eye Surgery?
A MyMyelomaTeam Member asked a question 💭
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Multiple Myeloma and Eye Complications: What To Know Read Article...
A MyMyelomaTeam Member

Ask your MD.

Ok, Is 1.80 Good For Lamda Free Light Chains ? In November It Was 17.7 Up From 11 In October
A MyMyelomaTeam Member asked a question 💭

And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests

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A MyMyelomaTeam Member

Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more

Why Am I Sooo Tired?
A MyMyelomaTeam Member asked a question 💭

Multiple myeloma for the last 9 years and have never been as tired as I have been for the last two weeks!

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A MyMyelomaTeam Member

I responded to an previous comment about how sugar brought on fatigue

What Does A Diagnosis Of MGUS Mean And Does It Progress To Myeloma
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more

Has Any One With Stage 1 Multiple Myeloma Had A Stem Cell Transplant? If Not, What Maintenance Program Are You On?
A MyMyelomaTeam Member asked a question 💭

I have Stage 1 multiple myeloma. I started treatment in January because of proteins in my urine. I am on Velcade, Revlimid and dexamethasone. I am on my 4th cycle. My understanding is that Revlimid will suppress stem cell production. So if down the road I may want a stem cell transplant my maintenance program would be the Velcade. I think the Revlimid might be a better option to for remission. I am wondering what others have found with your treatments.

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A MyMyelomaTeam Member

Thanks for your response!! How long have you doing the 10 mg revlimid? Does it seem to be keeping your test levels where you want to be? I am doing pretty well. I have some fatigue and tingling in my… read more

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

What is CCML

Is There Any Professional That Could Take The Time To Discuss An Unique Case?
A MyMyelomaTeam Member asked a question 💭

I believe my case can provide alot of early info not previously known or rare. From the moment my pain started I had a low M-spike of only .7 and my pain has been bad enough that I went to the emergency room 6x last year. I have had lots of imaging and blood test that I believe can add insight to earlier detection of people that will progress to MM. I was told that my odds of progression would be years at best. But I felt it in my body and less than a year I was right. Then I was told I had 3… read more

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A MyMyelomaTeam Member

I guess the best way for us to help other people is to participate in clinical trials. Also to participate in fundraising events to raise awareness for myeloma. Also you can go to Healthtree.org. Sign… read more

Curious About This Support Site
A MyMyelomaTeam Member asked a question 💭

Is this site for all blood cancers, not just Multiple Myeloma? Is there a different section or page for other myelomas, such as Leukemia?I just did a search and saw this site is for myeloma, and only mentioned Multiple Myeloma once, so I'm assuming MM is just one.....

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A MyMyelomaTeam Member

Just multiple myeloma.