I am 5 months post transplant. It was successful and I’m told I’m in remission. On a 2 year maintenance program. I have felt pretty good but lately I’m feeling more fatigued. Is this normal? Will it ebb and flow? As a very previously healthy and active person, I find this discouraging. The Lord is my strength and I know He’s in control. Also, I’ve lost 18 pounds through this ordeal and only gained 3 back in 5 months. I thought it might be encouraging to hear someone else’s thoughts/experiences… read more
Thank you Pap and Kathy. And all you huggers💕 I do try to be active as much as possible. My husband and I walk 1 1/2 - 2 miles daily even in this frigid snowy weather. It’s one of the highlights of my day. I’m hoping to resume golf this spring if my Dr. approves it. My maintenance was set by my Dr. Revlimid 21 days on and 7 days off along with 1darzalex infusion monthly. After 2 years he said we wait and watch. I appreciate those who took their time to respond, it was helpful. May God continue to give us all the grace and strength we so need.
Hi Nana, Yes, I , too, experience fatigue...I know I have not been active as I should be due to lower back pain (not related to myeloma). I think my inactivity has made my fatigue worse than it should be. I encourage you to be as active as possible. I went through a sct but did not go into remission. We not other chemo combinations and a year later went into remission with darcelex and kyprolis. I wondered how long to stay on maintenance. I read you were on maintenance for two years. Not sure how long to stay on maintenance. God bless you and all of us on this journey..
Kathy Brown, from Oklahoma City
Oh yes fatigue is very common! And only 5 months after sct is early. I am on Revlimid and it causes fatigue too. I try to stay active, it helps me!!
Take care! 😊
Yes. Fatigue seems to come and go.
You'll see people here stating that they're having a good day. They're more than likely feeling as close to normal as possible.
I'm also having trouble adjusting to my lack of mobility from medication and pain. I hate the fact it takes me longer to do any common tasks.
On the upside, it has taught me not to take so much for granted.
I hope this helps some.
Thanks, Jenny. I will proceed with therapy at 5 mg because I want to maximize my remission. And up until now, my doctors have counseled me well. Frankly, due to the recent advancements in MM research and new treatments, this process is very much a shifting landscape! And we're riding it out.
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