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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Yes

Yes

I have smoldering MM but don’t see a lot of others here that might be experiencing it??

posted 10 months ago
A MyMyelomaTeam Member said:

Yes, There are many on this site with Smoldering Myeloma. It is a good Stage to be diagnosed at because your doctors will watch your blood counts closely to catch it when it turns into Active Myeloma, before it damages your bones, kidneys or other organs! Go to the the lines at the top right of this page, then click on meet others, scroll down to type of Myeoma and put in Smoldering. Others with Smoldering should pop up. Have a good night! Love, Marcia 🌼🌸🌻

edited, originally posted 10 months ago
A MyMyelomaTeam Member said:

I ended up with a bone marrow biopsy which showed I had smoldering myeloma. My oncologist said I was not showing any particular symptoms at the time and I had appointments and heavy lab work every three months. This had been going on about a year. I saw my light chain/heavy chain ratio gradually increase. Just this past October I had another Oncology appointment. Got a late evening call from my Oncologist saying we need to talk. My ratio percentage had gone up from approximately 72% to 124%. Anything greater than 100 is a true sign that the myeloma had gone from Smouldering to Active. I have the light chain multiple myeloma. I was started on Velcade (Bortezimib) injection, Dexamethasone and Ondesetron each week along with Revimid pills daily (14 days on 7 day off cycle). Going in next week for a Autologous SCT consultation. I am 71 years old and in pretty good health other than this myeloma. The new cutoff age for the SCT is 70 years old but could still be done on a case by case basis with a lot of factors to consider. I feel confident I will “make the cut”. So life goes on. Just rolling with the punches right now and we will see how everything plays out.😃

posted 9 months ago
A MyMyelomaTeam Member said:

I too am smoldering. Took 14 months to get final diagnosis. It appears my anemia is not from my myeloma. So confine wait and watch. Currently on monthly dates which I suspect will go to every other month or less often after I see MM specialist at Mayo again in May. Until then my pop oncologist and I wail just keep checking blood levels. How is it going for you? Lots of labs, fair amount of angst, wondering what is going on? All natural feelings I hear. Reach out for help, get a myeloma coach and ask your doctor all your questions and good explanations if you don't understand. Take care. Carolyn

posted 10 months ago
A MyMyelomaTeam Member said:

Hi PoppyJ, How are you? Pray you're doing well. Haven't been on this site for awhile. Trying to catch up. Is the SCT still on? In addition to MM, had cancer in small intestine which was removed almost 2 years ago. Currently being treated with Keytruda for cancer that spread to lungs. I feel great and like you, I am grateful to "keep rolling along" and living my best life! Love. and peace. louise🤹‍♀️😉

posted 8 months ago
A MyMyelomaTeam Member said:

That is super Louise. I am 71 and other than the Myeloma, in pretty good health. Met with the “main man” yesterday at the Georgia Cancer Center and we are a “go” for the SCT probably late Feb or early March. I just completed cycle two of my 14 days on/7 days off of my Revlimid plus weekly injections of Velcade and Dex pills. Start cycle three next week. Got to beat this stuff down so we can get on with the SCT. Peace, Joy and Love to you. Have a Merry Christmas.

posted 9 months ago
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