Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.
This is the only oral surgeon in Syracuse area that does this kind of work. In a month we will be in Florida and will be able to get an oncology dental surgeon.
I guess you mean infected gum area??
I had osteonecrosis from Xgeva, and it was taken care of with hyperbolic oxygen treatments. No pain at all since the treatments!! Ask your husband’s doctor. It may be an option for him. 💕
Praying for his pain to go away
I read some where 30% of MM Patients will get Osteonecrosis from taken bone strengthening medication So far I haven’t had any issues since I had to teeth pulled. I pray that I don’t They are putting me back on Zometa on Monday All I can do is pray it doesn’t cause me any issues