Very early in the process for me. Does just having positive results mean that I will eventually have bigger and bigger numbers or issues? I’ll be doing blood work and 24 hour urine analysis soon to see better detail. My doctor (first time to oncologist/hematologist) said I have nothing to worry about. But I can’t help but think it can only continue to progress. Am I overreacting? Or is that exactly how this works?
After a second opinion from Emory Winship Cancer Center my diagnosis is smoldering multiple myeloma, with an intermediate risk for progression to multiple myeloma. I should be relieved but I won't take my foot off the gas when it comes to my health.
Please, no matter how draining this disease can be, continue to fight for the best for you. Ask questions, process the answers, and then ask more questions about your diagnosis, treatments and access to care.
Talk to your insurance carrier as often as you talk to your doctor. Find out how your claims are processed. Educate yourself fully on your health plan and how that plan meets your health care needs. And most importantly, keep track of every receipt and every bill. Make sure your insurance carrier knows who you are, what treatments you receive, as well as those you didn't. I've received some interesting bills that didn't make sense. And if, for any reason you can't keep track of your insurance, have a trusted love one do it for you. Find out what they need legally to fight with you, and let them do this for you.
Exdous 14:14, God tells us to be at peace and he will fight for us! Everyday I ask God to give me peace, and with that peace I see him fighting for me by giving me a wonderful family and friends, a caring and capable medical team, and the strength to meet everyday with a renewed commitment to be mentally, spiritually and physically healthy. And I pray the same for you, my extended family!
Stay strong and much love, we got this!
Less than 1 is really good news. Start thinking of eating healthier food and exercising to get that number lower.
Me too! I have a treatment plan but my oncologist is still running test. He said my chemo will probably start next month. I'll have 3 to 4 months of chemo followed by a stem cell transplant. I'm nervous but ready to get started.
Thank you! Thank you! That’s great information and fantastic advice. I go next week for follow up to see exactly where I stand. Results from oncologist/ hematologist blood and urine tests will be revealed and discussed.
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