Connect with others who understand.

sign up log in
About MyMyelomaTeam
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

MGUS Or Something More?

MGUS Or Something More?

My rheumatologist ran a bunch of bloodwork searching for answers to my symptoms. This was the result of my latest lab:

Serum Immunotyping Interpretation
Your Value
AN IgA KAPPA MONOCLONAL PROTEIN IS IDENTIFIED IN THE GAMMA REGION. RECOMMEND SERUM FREE LIGHT CHAIN ASSAY BY NEPHELOMETRY FOR CONFIRMATION OF THE PRESENCE OF A MONOCLONAL PROTEIN.

My doctor said that I likely have MGUS, but not to worry bc I have minimal amount of abnormal protein. I didn’t see a value, just the presence. I’m being… read more

A MyMyelomaTeam Member said:

Hi Meddgirl, I would have a second opinion from a Myeloma Specialist. A Myeloma Specialist would decide if further testing were appropriate. You want a Myeloma Specialist on your team because Myeloma is a complex and complicated diseases with sub diseases. There is new research, medications and clinical trials coming out daily and you want a doctor that knows this disease and is privy to the rapidly changing information. If you need to travel to get a Specialist you can have the Specialist direct your care to a Oncologist/Hematologist in your area. Kidney disease is also a sign of Myeloma. Don’t wait until your kidneys start shutting down. Have a good night! Love, Marcia 🌸🌼🌻

posted 10 months ago
A MyMyelomaTeam Member said:

A oncologist who specializes in would be my next step. When you do make a appointment be sure to ask to be called if there are any cancellations. Hope this was helpful. Have a good day.

posted 10 months ago
A MyMyelomaTeam Member said:

I've had smoldering myeloma for 14yrs. I have blood work every 3 to 6mo depending on how I feel and what my results are. The myeloma is in my light chains and I have some kidney issues and lots of back pain. Overall my numbers have stayed pretty steady thru the years. Try not to worry to much this is a pretty slow moving disease and there a several treatment options now. Have a good day.

posted 10 months ago
A MyMyelomaTeam Member said:

Please go and get checked for Multiple Myoloma. I wasn't diagnosed till stage 3. Yes, it's worth it.

posted 9 months ago
A MyMyelomaTeam Member said:

Meddgirl yes I definitely would get a second opinion from an oncologist before things get out of hand. Meddgirl thanks for the hug and hope you find the answers you need.

edited, originally posted 10 months ago
Already a Member? Log in