MGUS Or Something More?
MGUS Or Something More?
My rheumatologist ran a bunch of bloodwork searching for answers to my symptoms. This was the result of my latest lab:
Serum Immunotyping Interpretation
Your Value
AN IgA KAPPA MONOCLONAL PROTEIN IS IDENTIFIED IN THE GAMMA REGION. RECOMMEND SERUM FREE LIGHT CHAIN ASSAY BY NEPHELOMETRY FOR CONFIRMATION OF THE PRESENCE OF A MONOCLONAL PROTEIN.
My doctor said that I likely have MGUS, but not to worry bc I have minimal amount of abnormal protein. I didn’t see a value, just the presence. I’m being… read more
Hi Meddgirl, I would have a second opinion from a Myeloma Specialist. A Myeloma Specialist would decide if further testing were appropriate. You want a Myeloma Specialist on your team because Myeloma is a complex and complicated diseases with sub diseases. There is new research, medications and clinical trials coming out daily and you want a doctor that knows this disease and is privy to the rapidly changing information. If you need to travel to get a Specialist you can have the Specialist direct your care to a Oncologist/Hematologist in your area. Kidney disease is also a sign of Myeloma. Don’t wait until your kidneys start shutting down. Have a good night! Love, Marcia 🌸🌼🌻
A oncologist who specializes in would be my next step. When you do make a appointment be sure to ask to be called if there are any cancellations. Hope this was helpful. Have a good day.
I've had smoldering myeloma for 14yrs. I have blood work every 3 to 6mo depending on how I feel and what my results are. The myeloma is in my light chains and I have some kidney issues and lots of back pain. Overall my numbers have stayed pretty steady thru the years. Try not to worry to much this is a pretty slow moving disease and there a several treatment options now. Have a good day.
Please go and get checked for Multiple Myoloma. I wasn't diagnosed till stage 3. Yes, it's worth it.
Meddgirl yes I definitely would get a second opinion from an oncologist before things get out of hand. Meddgirl thanks for the hug and hope you find the answers you need.
