I live in the Kansas City area where there are several Cancer Centers, but very few (3) Myeloma "Specialists" listed. I see many more listed out of state -- is it worth it to seek one despite the added logistics, especially as a Newbie still going through initial Diagnostics? Thanks in advance for any suggestions, including recommendations.
Could you find a doctor that is willing to Teleconference with a Myeloma Specialist? Don't know how high risk you are, but if you have high risk genetics it is worth driving every 6 months to see a specialist. The Multiple Myeloma Research Foundation has a list of specialists. Good Luck ๐
Sounds like a great team, Melodee! Tell them I said take good care of you xo :) That's my hope; get Specialists on board -- and the right kind.
You have to. Myeloma has so many new treatments, a regular oncologist can't keep up. Studies show you live longer with a specialist. Wishing you the best ๐ God was right there when I was diagnosed. Got diagnosed by a research doctor, who sent me to a great oncologist, who sent me to Emory to a specialist๐
I go to a mm specialist I at the university of nebr medical ctr in Omaha ne. A great place. Had my sct there 5 years ago still in remission. Dr. Matthew Lunning was my transplant doctor now I see Dr. Sarah Holstein. Great place
I do have 2 specialists. One is a transplant specialist. They are both terrific and work together on my case