Is It Advisable To Seek A Myeloma Specialist? | MyMyelomaTeam

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Is It Advisable To Seek A Myeloma Specialist?
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ

I live in the Kansas City area where there are several Cancer Centers, but very few (3) Myeloma "Specialists" listed. I see many more listed out of state -- is it worth it to seek one despite the added logistics, especially as a Newbie still going through initial Diagnostics? Thanks in advance for any suggestions, including recommendations.

posted September 9, 2020
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A MyMyelomaTeam Member

Could you find a doctor that is willing to Teleconference with a Myeloma Specialist? Don't know how high risk you are, but if you have high risk genetics it is worth driving every 6 months to see a specialist. The Multiple Myeloma Research Foundation has a list of specialists. Good Luck ๐Ÿ˜

posted September 10, 2020
A MyMyelomaTeam Member

Sounds like a great team, Melodee! Tell them I said take good care of you xo :) That's my hope; get Specialists on board -- and the right kind.

posted September 11, 2020
A MyMyelomaTeam Member

You have to. Myeloma has so many new treatments, a regular oncologist can't keep up. Studies show you live longer with a specialist. Wishing you the best ๐Ÿ’• God was right there when I was diagnosed. Got diagnosed by a research doctor, who sent me to a great oncologist, who sent me to Emory to a specialist๐Ÿ’œ

posted September 10, 2020 (edited)
A MyMyelomaTeam Member

I go to a mm specialist I at the university of nebr medical ctr in Omaha ne. A great place. Had my sct there 5 years ago still in remission. Dr. Matthew Lunning was my transplant doctor now I see Dr. Sarah Holstein. Great place

posted February 21, 2021
A MyMyelomaTeam Member

I do have 2 specialists. One is a transplant specialist. They are both terrific and work together on my case

posted September 11, 2020

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