Is Treatment For MM Needed When In Remission? | MyMyelomaTeam

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Is Treatment For MM Needed When In Remission?
A MyMyelomaTeam Member asked a question ๐Ÿ’ญ

We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy

posted July 29, 2020
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A MyMyelomaTeam Member

Hey Roy, I go to Emory every 6 months. I saw Dr. Nooka on Zoom in May. I'm doing well. I had a transplant Dec 20, 2017. Inpatient at Emory. They have 7 myeloma Specialist's. Jonathan Kaufman is my favorite. He is super sweet. My doctor, Dr. Ajay Nooka is good if you have aggressive disease like me. The head of the Department, Dr. Sagar Lonial, is very good of course. He still sees patients. Craig Hofmeister is good also. Emory saved my life for real. Its a good treatment center for myeloma๐Ÿ’•๐Ÿ’–๐Ÿ’ž

posted August 12, 2020
A MyMyelomaTeam Member

I think this is different depending on the doc. It is my understanding that there is no cure. So it is important to keep getting blood work done. Every patient seems at one time or another to go thru remission, not to be mistaken for a cure. I don't have much problem with Revlimid except the cost so continue with 5mg while in remission.

posted May 8, 2023
A MyMyelomaTeam Member

Thanks for all your answers I am I am Off meds advice off Dr at Dana Farber said that I am in remission and the MM is not aggressive so until they see any spike I will stay off medication

posted October 19, 2021
A MyMyelomaTeam Member

Roy and Sand, I think the protocols at Emory are quite effective. I was there for infusion just today and have been going every other week. I have been a patient since June 2016. I go to the Winship location on Peachtree Dunwoody Rd. We have to trust the process I guess.

posted August 12, 2020
A MyMyelomaTeam Member

I still take Revlimid for maintenance and have been in remission since 2019. It is for maintenance. I take a blood test once a month and see my doctor every two months unless he sees something in my blood work

posted June 9, 2023

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