We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy
Roy and Sand, I think the protocols at Emory are quite effective. I was there for infusion just today and have been going every other week. I have been a patient since June 2016. I go to the Winship location on Peachtree Dunwoody Rd. We have to trust the process I guess.
Hey Roy, I go to Emory every 6 months. I saw Dr. Nooka on Zoom in May. I'm doing well. I had a transplant Dec 20, 2017. Inpatient at Emory. They have 7 myeloma Specialist's. Jonathan Kaufman is my favorite. He is super sweet. My doctor, Dr. Ajay Nooka is good if you have aggressive disease like me. The head of the Department, Dr. Sagar Lonial, is very good of course. He still sees patients. Craig Hofmeister is good also. Emory saved my life for real. Its a good treatment center for myeloma💕💖💞
The maintenance therapy is generally suggested and it's generally a reduce form of chemotherapy. BTW regarding the nephropathy, how is her glucose level?
I am on Revlimid for maintenance after having had my SCT six months ago. The docs day it helps keep the MM at bay! Good luck and please keep us posted!
Thanks for responding. Her glucose level has been fine.Her foot neuropathy is improving as time goes on. Just trying to determine the best way forward with least amount or no treatment. Will find out if she is still in remission mid Aug.
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