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Darzalex

Darzalex

I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

A MyMyelomaTeam Member said:

Yes i am on darz and ninlaro..my numbers got better but no to a stable number i told my dr
1 more blood test then something new I believe Ninlaro just isnt strong enough to kick it out..Pomalyst doesnt work for me at all...Loverd Darz alone but it stopped but i will see next numbers..i had no reactions. With Revlimed or Darz..good luck let us know how its working

posted about 2 months ago
A MyMyelomaTeam Member said:

I loved darzalex wish i could go back on it but it just stopped working..
Pomalis gave me instant hives and rash..Niw this Nonlaro is like takinh nothing too its 1 pil a week for 3 weeks and one week off but i will see next week.with the blood to see if its good or not..but there are othets so never worry..

posted about 2 months ago
A MyMyelomaTeam Member said:

After 16 doses I got to go to monthly

posted about 2 months ago
A MyMyelomaTeam Member said:

Dr. Stan, I love Darzalex. I'm also on Pomalyst so I can't tell which side effects are from which drug. My numbers are good. I haven't been sick since transplant. It just got approved for administration subcutaneous. Less chance of a reaction and it works just as good as the IV form. Just praying it continues to work on my myeloma. I've been on it since 2017πŸ’•πŸ’“πŸ™

posted about 2 months ago
A MyMyelomaTeam Member said:

I used Darz for a few years then it stopped working so they added Ninlaro..it worked OK but not great I get my blood test on June 3..I told my onch that if it doesnt change i want a new drug..Seems ninlaro just doesnt bring the numbers down strong enough..Pomalyst did nothing for me at all..But Cheer up because there are others and different mix and matches so I wont stress yet..Good luck amd let us know how your doingπŸ˜·πŸ’™

posted about 2 months ago
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