I have a question , my stem cell transplant was Oct 2018, in remission . Recently my hands have become painful, I’m still active and working but it’s frustrating and worried it will get worse .My oncologist said I need to stop the Revlimid and think about “quality of life”, with no other alternatives , has anyone else experienced this? Are you familiar with other treatments?
I think this is an example of the reason patients are encouraged to get second opinions.
I do have some pain but it's mainly in my fingers. But I would think they could give you something..not just stop the revlimid and that's it. Do you think it's neuropathy? Good luck sugar..but I am so impressed with you for continue working. I don't work anymore..hope you feel better soon. Hugs
Hi Peter,
He is a MM specialist down at Emory, hematologist and researcher as well , that’s why I was so shocked he was just throwing in the towel with that minor issue
Nora....you really need a MM specialist, I think.
I was on steriods and cybor D. This drug is second generation chemo. Much cheaper than revlemid. I did very well on it. I feel great, exercise regularly and can do all my regular activities except drive because the steroids caused my cataracts to grow. I’m getting them fixed this month. It did not destroy my own stem cells if I chose a transplant which it appears I will not be getting because according to two specialists I’m doing so well a SCT will put my body through too much. I’m very happy with this course of treatment. I feel like I returned to my new normal very quickly.