managing peripheral neuropathy in myeloma and myeloma | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "managing peripheral neuropathy in myeloma"

reset
Please Inform Anyone Have Painful Hands? Also Hands Unable To Turn Pages Of A Book Or Write Or Use A Computer Except Using Pinky Finger.
A MyMyelomaTeam Member asked a question 💭

This is my fiancée Dale. Yes you read this correctly. We are still together.

•
View reactions
A MyMyelomaTeam Member

Yes it is frustrating not being able to turn pages, especially in my well worn bible.

I Had Peripheral Neuropathy Many Years Before Being Diagnosed With Multiple Myeloma,
A MyMyelomaTeam Member asked a question 💭

However, it has definitely became much more intense in the past 2 years. I now must use a walker as my balance is very poor. Also my fingers are numb feeling, I also get a tingling burning, itchy feelings in my hands and arms in the early morning. Any advice to relieve these feelings would be appreciated.
Wish a great day for all of you.

•
View reactions
Managing Peripheral Neuropathy in Myeloma Read Article...
A MyMyelomaTeam Member

Terry yes there are meds for neuropathy and I did take gabapentin for a while but did not see any improvement so we discontinued it. I checked on lipoic acid yesterday but I am on thyroid meds so… read more

I Have Increased Neuropathy With MGUS. What Are The Best Ways To Deal And Treat This?
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

Tim,
I’m taking Nutritional yeast which has B vitamins in it. Also, Alpha Lopoic Acid.

Neuropathy Treatment
A MyMyelomaTeam Member asked a question 💭

Has anyone heard of or tried Combined Electrochemical treatment (CET) for neuropathy? I have a consult tomorrow with Loma Linda Medical Center here in Southern California to see if is something I would benefit from. Insurance doesn’t cover it, but the consult is free so going to hear what they have to say.

•
View reactions
A MyMyelomaTeam Member

Maybe ask why it is not covered?

Has Anyone Overcome Or Know Of , To Rectify The Neuropathy In My Feet After 3 Months Of Chemotherapy , I Walked Ok For Treatment , But Now
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

I would ask a podiatrist as there are various types of neuropathy and treatments may be different.

Does Anyone Have Tingling Wierd Feeling In Hands And Feet. Anyone Hsve Transplant?
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

Neuropathy is generally permanent. Meds can modify symptoms. Best to keep at bay in beginning if possible. Velcade is esp notorious as a cause of neuropathy.

Not On Any Treatment Nor Had Any Treatment But Starting To Have Some Neuropathy In Finger Tips - Is This Normal?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Myeloma itself can cause some neuropathy in some people.

How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

Harry! Lol. It's not enough. My mom took 3-4 heaping teaspoons of Nutritional Yeast a day. Mixed with juice. Not beer. Lol. Lots of B vitamins to prevent neuropathy and support your immune system and… read more

I’m Starting To Feel Like Needles Are Pricking In My Feet And Fingers. What Does That Mean?
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

Hi!
ok thanks
I've had a B12 deficiency since May of 2023 and injection every week. I've been out of the loop since my recent diagnosed change.

Anyone Experience Painful Neuropathy With Velcade? I Had Skin Sensitivity And Pain? Mine Was Not In My Hands & Feet As Is Typical.
A MyMyelomaTeam Member asked a question 💭
•
View reactions
A MyMyelomaTeam Member

Hi Shelley
I developed PN in my feet while receiving Velcade injections preparatory to my ASCT in 2015. During that time, I found relief with acupuncture (much to my surprise). The PN persisted after… read more