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Revlimid

Revlimid

I’ve been on Revlimid for approximately 4 years with very good results thus far. I was diagnosed with MM 5 years ago and have NOT had a stem cell transplant. I’m just curious if other have also been on Revlimid without a transplant? If so, how long has it been. For those who were on Revlimid, and eventually needed a transplant, how long was the Revlimid effective? It’s my understanding at some point the drug will lose it’s effectiveness, and I will need to explore other available options… read more

A MyMyelomaTeam Member said:

I'm not sure if I answered this or not. I take Revlimid everyday (10mg), and have not had a transplant. However I've only been in treatment since Nov. 2018. I hope I can stay as is for as long as you.....and beyond. I also get monthly Zometa. So far, so good, I guess. My free chain ratio is a bit of a concern apparently but my oncologist is keeping a watch on everything..

posted over 2 years ago
A MyMyelomaTeam Member said:

He stays busy doing things around our farm and house. He always thinks he might be lazy(even though anybody that knows him knows that isn't the case!) He is definitely a lot slower than he use to be, but refuses to sit around.

posted over 2 years ago
A MyMyelomaTeam Member said:

It sounds very similar to the course of treatment I have thus far had. I too have had my stem cells collected but haven’t had a transplant. I’m just hoping the Revlimid will continue to keep working. I’m also hoping by the time it is no longer effective, there might be other options available besides a transplant. I’m sure giving up a job he truly loved has to be very difficult but at this point it all a matter of priorities. He needs to focus on his day to day health. I try not to look to far ahead otherwise you find yourself overthinking everything, and consequently driving yourselves crazy. Just enjoy every day you have together. There are no guarantees in this life.

posted over 2 years ago
A MyMyelomaTeam Member said:

I hope Revlimid proofs to be as effective long term for you as it’s been for me. What worries me is being lulled into a false sense of security though. I guess we all just have to live day to day and make the most out of each moment. Wishing you you the best Amy.

posted over 2 years ago
A MyMyelomaTeam Member said:

I started with 10mg revlemid with my maintenance cycles...it worked for 4-6 months, until my blood spiked...they promptly put me on 15mg dose, and is where I'm at today...they determined that I have the lesser volatile MM, and unless something changes, I will be on this therapy for the foreseeable future...I have collected my stem cells, for a potential SCT, I only have a couple years left to use what I have collected, then age becomes a factor...but as time goes on, I would look at all possible therapies before suppressing my body for a SCT...I'm shooting for at least 20 years with this therapy, I will though, take what I get!...stay healthy! ..😊...

posted over 1 year ago
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