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Back Pain
A MyMyelomaTeam Member asked a question 💭

So I've heard alot about bone lesions. I'm wondering if someone could tell me what the pain is like.
I have lower back pain for about a month and and today it's like my whole back hurts. It's just pain tho.
I'm not sure if it's from the MM or just pain. I'm still waiting to meet my new Dr on the 20th so I've been unmonitored for 3 months. I will have blood test this week.
I'm just wondering if anyone can tell me how the pain starts.

posted May 6, 2019
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A MyMyelomaTeam Member

Hang onto the scrapbook as mine was swimming. But re bone pain - I don't think we have any nerves on our bones so the effect of "bone pain" is indirect. What does that mean? My best guess is that before the doc shows you your MRI of full body scan that you hopefully have not broken any bones - but you feel tired midday or after work. Then you take a nap and are ready for bed at the usual time. A sign your body is not functioning like it did in the old days. So fast forward to M-spike, MGUS, IgG and the famed body PET/CT or full body x-ray and you'll see little pops on your bones. This is not good but a tell tale of MM. Apparently it takes our energy away when we used to have it. Our best hope is to lower the M-spike and hope we live longer than if we did nothing. Between that and the old days - we are here now. That's pretty good for not giving a direct answer isn't it?

posted May 26, 2019
A MyMyelomaTeam Member

Colleen-I think many of us were eventually diagnosed due to pain. After the diagnosis, it all made sense. I made all sorts of excuses for a couple years: must have turned wrong lifting weights, tried lifting too much, fell off a ladder and wrenched my back, must be from playing so much golf in my youngeryears, extremely tired-must be stress at work, etc etc. Finally the pain worsened so that it was excruciating....went to the docs, xrays showed nothing, did a blood test and proteins were off the charts...more blood tests showed M clone. MM diagnosis. In my case, I had bone damage in six laces caused by lesions (places were cancer cells accumulate). My damage was not as bad as many with only one slight fracture. Hind sight really is 20/20. All of my excuses just allowed the disease to cause more problems. You are doing the right thng getting examined.

posted May 7, 2019
A MyMyelomaTeam Member

I hear ya Colleen...hang in there!

Yeah, let me know how it goes on your appointment on the 20th. I understand your fears, I think a lot of us do. What kind of pains calling are you having specifically lower back pains mid-back or what and do you know what a kyphoplasty is like what I had?

I had those type of Kyphoplasties due to something called 'compression fractures' that happen to your vertebrae. That usually gets detected by MRI and x-rays.
Hugs..Daniel 😁

posted May 7, 2019
A MyMyelomaTeam Member

Thank you I've heard about magnesium I think I will try that.

posted August 19, 2019
A MyMyelomaTeam Member

Had issue with heels and calves, took CO Q10 and 400 mg Magnesium daily and after about a month it cleared up

posted August 19, 2019

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