Has Anyone Been On Daratumumab? If So, Can You Give Me Some Feedback On Your Experience With It,please. | MyMyelomaTeam

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Has Anyone Been On Daratumumab? If So, Can You Give Me Some Feedback On Your Experience With It,please.
A MyMyelomaTeam Member asked a question 💭
posted April 14, 2019
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A MyMyelomaTeam Member

The first infusion in all day or they can split it up over two consecutive days. After 16 doses he gets to go to monthly which is not bad at all. I take my premeds on the way to the clinic. So far so good😇

posted April 17, 2019 (edited)
A MyMyelomaTeam Member

International Myeloma Foundation has a series of understanding MM and understanding Darzalex is in the series,go to their website to see if they still have it there I got mine's from my support group here in Philly (PMMNG is my group name)

posted April 14, 2019
A MyMyelomaTeam Member

I had researched Dara and was incredibly impressed. I am on a Dara clinical trial but was randomized out of the Dara. However, as good fortune will have it, the sct and RVD has worked wonders foe me and I will have Dara available if and when I need it. All I have read is good things about Dara. Good Luck with it!

posted April 14, 2019
A MyMyelomaTeam Member

I have been taking it since March with minimal side effects but I feel like I am high on pot,slight headache and fatigue the next day.

posted June 12, 2019
A MyMyelomaTeam Member

My first infusion I had a reaction .. as soon as they increased the drip rate I started coughing. Within seconds I was wheezing, short of breath and felt my throat swell. They stopped the infusion, gave me extra steroids, let me recover then started over. No further problems. I usually have a slight headache the night after my infusion and the next morning.

posted May 7, 2019

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