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I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏
Remember, you eat the elephant one bite at a time! Not all at once. Praying for you, that our God will take you through each day and each moment of each day. Keep us posted, and don't forget to… read more
What do you have to share about your experiences with the Stem Cell Harvesting process.
-How long do they take to harvest the stem cells?
- What are the side effects of the medications to enable stem cell harvesting?
- Are there any issues or effects on your body during and soon after stem cell harvest?
- Hoe long does your body feel the impact and time to replenish stem cells?
-Any other input?
I was in the hospital 19 days following my ASCT. For the first week of my hospital stay I wondered why I was in hospital (to prevent any exposure). Then it hit and the diarrhea continued for long as… read more
There's a pill for that, but it really doesn't help me. It just puts me to sleep . Med for depression gives me ...anxiety, so I don't take it. It's not easy distracting our thoughts sometimes… read more
Just had my bloodwork. Consistent with previous bloodwork. I don’t see the oncologist till the end of the month but one test in big letter said no m spike detected. Does that mean I’m still in remission
Wow, eye-opener. My M is always undetectable. I'll check my very first test to see if the m spike showed up then. My bmb was barely enough to test but they decided I had MM anyway;by way of blood and… read more
My husband has had 8 weeks of chemo.
This is determined by your MBand, if it is high your doctor will recommend a number of cycles to bring it to zero which can take several months. If low then you under go only a few chemo cycles… read more
I get three shots per week, two in stomach and one in upper thigh. Finding going though them harder each time we arrive. The thigh injection very painful and slow. Only in my first cycle, can’t imagine all that are yet to come. Feeling bad cause I know all of you are going thru the same or perhaps much worse. Maybe just need to express myself. Trying to keep the end goal in mind. Thanks in advance cause I know the support will follow. ☮️ and ❄️ from Minnesota.
Brave Beverly, that has a nice ring to it, 😊 I will reread your post when it’s time for me to do that. Inner strength for brighter tomorrows. Congrats on you courageous spirit, I will draw… read more
I have been in induction (different concoctions) since March. My numbers have been moving down but ever so slowly. My specialist thinks I should move forward with stem cell transplant rather than continue punishing treatment to beat mspike down. He feels we can do more treatment after transplant if necessary My M Spike is now 1.3. I have a bone marrow biopsy scheduled for 18 Jan. Does anyone have experience with transplant at or above 1.3? I know everyone is different, but still helpful to… read more
thanks Carol! I’m so glad you had good results. What was the rationale for starting with ASCT? Are you on maintenance therapy now?
My husband diagnosed in 2009, currently on sarclisa,Pom,Dex. Recently developed orthostatic hypotension, lasts for a short periods, How has it changed lifestyle? He’s semi retired and we downsized to a condo, we have always had dogs. He wants to get another one, can’t decide if it’s a good idea or not? Anyone with experienced with this side effect and how it changed your lifestyle?
Yes I have what I call the wobble effect just sorta unsteady
He orders transfusions. Usually when I go for the tests it is at 6.1 to 5.5 and I am super weak plus needing oxygen to function. I do not have an oncologist, he dismissed me as untreatable. Is there anyone else on here who is going this route?? How many times can I have trasfusions??
Exactly my thoughts also. It’s like when my dr. phones me to tell me that I have cancer.
