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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 8 search results for "Thalomid" in Q&A. To see all results and access other features, sign up for free.

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CTD Treatment

A MyMyelomaTeam Member asked a question 💭
Serbia

Does anyone have been on CTD treatment

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A MyMyelomaTeam Member

Thank you for answers,when my dad finished treatments I can ask a dr to change thalidomid

So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?

A MyMyelomaTeam Member asked a question 💭
Las Cruces, NM
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A MyMyelomaTeam Member

If you have become refractory to Revlimid, then the other IMIDS will probably not work. Depending upon your cytogenetics, you could use Venetoclax (t11,14) or go with a CAR-T. Make sure you are… read more

Does Anyone Go To The City Of Hope In Goodyear AZ? Can Anyone Offer Their Experiences With Revlimid Or Dexamethasone?

A MyMyelomaTeam Member asked a question 💭
Goodyear, AZ

I’m being treated for high-risk Smoldering Myeloma at City of Hope in Goodyear AZ. I’m in a Research Clinic Trial on the effects of Daratumumab to enhance the effectiveness of Revlimid in Smoldering Myeloma. Is anyone familiar with or in this Trial?

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A MyMyelomaTeam Member

Thanks for all the info you have sent. Much appreciated!

Has Anyone Experienced Bone Marrow Edema

A MyMyelomaTeam Member asked a question 💭
Detroit, MI
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A MyMyelomaTeam Member

I can't remember if edema is a possible symptom of MM. But I know it is a possible side effect of some of the drugs used to treat MM. I have edema in my legs and arms. It's not serious in the arms… read more

I Will Start Velcade Soon. What Can I Expect?

A MyMyelomaTeam Member asked a question 💭
The Woodlands, TX

I am close to 94 yrs and will start Velcade next week. Where is it injected and what are the side affects?

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A MyMyelomaTeam Member

Starting treatment with Velcade (Bortezomib) for myeloma involves several key aspects:

Administration
- Method: Velcade is administered either as a subcutaneous injection or an intravenous… read more

Does MM Or The Meds Cause Short Term Memory Problems? One Day I Forgot My Best Friend’s Name! 🤦‍♂️

A MyMyelomaTeam Member asked a question 💭
Abilene, TX
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A MyMyelomaTeam Member

Brain Fog...

Has Anyone Been On Maintenance For A Long Time

A MyMyelomaTeam Member asked a question 💭
Worthington, WV
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A MyMyelomaTeam Member

It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....

Just Started Cycle 7 Of 10mg Of Revlimid 21 On And 7 Off. Muscle Pain And Stiffness Are Awful.

A MyMyelomaTeam Member asked a question 💭
Jonesboro, AR

Have you experienced this? If so what did your Dr do? I was on 100 mg of Thalomid for almost a year and did great until it didn’t. Heart rate dropped to 42, thus the switch to Revlimid. Between the diarrhea and the awful full body pain and stiffness I just feel awful. I will be discussing with my DR. I had hoped it would get better but to no avail. I also do Darzalex monthly. IVIG monthly and Zometa monthly. Could the stiffness and soreness be from IVIG? Would love your feedback. I’m ready to… read more

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A MyMyelomaTeam Member

I was having the same problems with Revlimid my onc starded my treatment with Darzalex, Dex, and Valcade once a week. I also have Zometa every 3 months for bone strengthening. I've been on this… read more