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I Have Not Been Able To Sweat And I Get High Fevers On The Drug Talvey. Has Anyone Else Been On Talvey And Experienced These Symptoms?
Melanie
I’m sorry you are not getting any answers from the team. Maybe they don’t have experience with this? Have you tried Googling it or read the information from the manufacturer? They usually… read more
What Is Talvey
Has Anyone Experienced Not Being Able To Sweat And High Fevers On The Drug Talvey?
You could also contact the nurse navigator with MMRF. I am sure they could help you💕
Anyone Had TALVY?
Side Effects Of Talvey
I’m starting treatment Monday and will have to be in hospital about a week for monitoring. Does anyone have experience with this?
Numbers are good however I am dealing with some side effects.
Hi, Anyone Else Dealing With Extra-medullary Myeloma (EMM)?
My version of multiple myeloma is rare apparently. I have extra-medullary myeloma, and it has manifested itself in two liver lesions, and now a soft-tissue plasmacytoma on my right gluteus medius muscle. The liver lesions resolved under treatment of Daratumamab-Pomalidomide-Dexamethasone, over 18 months. In April and July 2024, MRI results showed a growing plasmacytoma on my muscle, which has been biopsied and is definitely MM, with the same markers as before, CD138 and CD56. Biopsy results… read more
Keith
It sounds like you are knowledgeable about the treatments. Our bodies are like cars, they replace parts that don’t works or if that doesn’t work, replace another one, then fix the dents.… read more
Breathing Issues Caused By Treatment.
Relapsed. Doing a Jannsen study which combines 3 drugs; Talley, Dara and Pom. Partial response so far. In month 5 of the study. Have fatigue and trouble breathing even though oxygen level is normal. Very frustrated.
Are you experiencing breathing problems while undergoing treatment for multiple myeloma? If so, it's important to discuss this with your doctor. Sometimes, medications used in the treatment of myeloma… read more
To Stem Cell, Or Not To Stem Cell? My Oncologist Says He Feels Con's Outweigh The Pros. 2nd Opinion UCLA Doc. Says It Is The Way To Go. ???
In 7th week of MM treatment. Numbers are falling fast. Side effects are sucking my soul.. Looking for data on stem cell success and problems. Any insight out there? Thanks. Rich from simi valley.
Deciding whether to undergo a stem cell transplant for multiple myeloma can be challenging. Here are some key points from your knowledge base to consider:
Pros of Stem Cell Transplants
- Potential… read more
Does Anyone Have Experience With Loss Of Taste Resulting From Treatment?
I'm experiencing 90% loss of taste from daratumumab (Darzalex) and talquetamab (Talvey). This is not an unusual after effect of both infusions, but I'm wondering if the taste fully returns after a defined period of time or are there remedial steps I can take (e.g., acupuncture) that help help make eating more enjoyable?
I have constant metallic taste in my mouth. I have been eating more spicy foods BUT I have a stomach problem now and it feels like I am developing an ulcer. Just had an endoscopy and I have an… read more
I Had The SCT In Dec/Jan And Both Hips Were In Pain Afterwards The Pain Is Centralized To Right Hip, Both Hamstrings,calves, And Ankles.
I'm sorry to hear about your pain. I didn't have any new pain after my SCT. I'm going to a new pain doctor. Mine retired.
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