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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anybody Else Have Multiple Myeloma That Is Smoldering. I Started Out With MGUS For 8 Years And Now Multiple Myeloma

A MyMyelomaTeam Member asked a question 💭
Michigan City, IN
April 15
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A MyMyelomaTeam Member

So do you have SMM or full blown MM? MM would have CRAB symptoms and cellular percentage of cancerous cells in your bone marrow over 60%. Unless you have e high risk genetics, SMM may or may not be treated early. This is now being studied in in clinical trials.

June 27
A MyMyelomaTeam Member

Hi Lynn,
I was diagnosed with MGUS in 2020 but I may have had it since 2011 or before. Last March 2023, I was diagnosed with Smoldering. I have IgA Kappa.
Paula

April 15
A MyMyelomaTeam Member

It's not uncommon for individuals initially diagnosed with Monoclonal Gammopathy of Undetermined Significance (MGUS) to later progress to smoldering multiple myeloma (SMM) or even active multiple myeloma. MGUS is a precursor condition that can evolve over time. In your case, transitioning from MGUS to multiple myeloma over Show Full Answer

It's not uncommon for individuals initially diagnosed with Monoclonal Gammopathy of Undetermined Significance (MGUS) to later progress to smoldering multiple myeloma (SMM) or even active multiple myeloma. MGUS is a precursor condition that can evolve over time. In your case, transitioning from MGUS to multiple myeloma over eight years aligns with known patterns of these conditions. It's important to stay in close contact with your healthcare team for regular monitoring and to discuss any changes in your condition or treatment plan. Sharing your experiences on platforms like MyMyelomaTeam can also provide support and insights from others who understand what you're going through.

April 15

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