Thank you
I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan
I was taken off ninlaro 2 yrs ago. This week I had my first M spike since transplant (2015). Is it likely that I will be put back on ninlaro?
That’s a good question for your doctor. You have to get control of your myeloma so there’s going to be an answer for sure. Best of wishes you get in remission again soon!
Hey Donnie, exercise is supposed to help treatment related fatigue. I would ask about the lowest dose of dexamethasone you can get away with. Maybe ask about a mild sleep aide when you have to take… read more
Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?
I’m confused and perplexed.
How long have you been doing treatments? Sometimes it takes a while for things to level off
Is there a backup treatment if revlimid rash (which is bad) can’t be controlled. Any ideas how to best dean with revlimid rash?
My rash was so bad that my oncologist stopped it. I am on Darzalex and Kyeprolis and Procrete, and Homonoglobin (? spelling). The last one is my 4 1/2 hour infusion on every 5th week. Teece
I would like to learn: who has or had been treated with “Ninlaro or Ixazomib”, Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you feeling? (before, during after?
Not me.
It is so bad that I now have to have a cane to walk.
Dr wants to put me on revlimid(10mg) and ninlaro (2.3mg) as maintenance after stem cell transplant and in total remission. Does anyone have experience using these drugs as maintenance. I have severe neuropathy from the early days of chemo(velcade) otherwise I feel great right now.
Thanks for sharing. My mom ended up in a rehabilitation facility after her rash. It was really bad. She could hardly stand with the swelling in her feet. She hasn't had any treatment since Dec… read more