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Thank you, Kathryn and Donna. We do live with so many challenges and a big one is the unknown. My oncology team is very encouraging and helpful, but the symptoms and confusing patterns are ours alone to figure out. Happy day to you, and at least we can communicate more rapidly than with the old "snail mail."
I rely on my myeloma panel that I get every 3 months. I get so achy and tired on my treatments, it would be hard to tell if the myeloma is causing the problem or the treatments. 😏
I understand that dealing with multiple myeloma can feel unpredictable. Here are some signs that may indicate the disease is worsening:
- **Increased Bone Pain**: This could be a sign that the myeloma is affecting more bone areas.
- **Extreme Tiredness**: Feeling more fatigued than usual can be a symptom of advancing my... read more
This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.
Most of my problems are fatigue, brain fog, and balance. All have been mentioned to my oncologist. He says I'm doing great, so I'm doing what I can to ....make my symptoms more liveable. Unless there is serious symptoms like the ones you mentioned, other " minor" symptoms are just kind of passed off. I report them to him anyway, so they will be in his notes/summary, for future reference. It's minor to him, but it's a big deal to me as far as daily life. I also, however, feel grateful that I don't have worse problems. Just my symptoms make it impossible to " hold a job or volunteer in the community. I'm a liability more than an asset. Anyway, my time is coming and I'm learning what may come. Thank you for the information, medwriter.👍🏻
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