Thanks DB. Here's the link to the Healthtree post on FISH testing 💕

Healthtree just posted a YouTube on Fish.

My doctor told me I was high risk. It's also stated on my medical records in my bone marrow biopsy results. It really helped me to get access to my medical records. I read everything. Doctor notes and labs. I looked up every thing I didn't understand so I could ask questions. I was really sick at diagnosis. My myeloma wasn't controlled with induction treatment so transplant it was. Everyone has a different myeloma. It helps to know as much about your myeloma as possible so we can advocate for ourselves.

DonnaAndrew
Hello Donna. I hope you are doing well especially with the crazy weather the last week.
You mentioned you are high risk MM and once high risk, always high risk and/or harder to treat. Did your doctor tell you this verbally or is it stated in your medical records and what determined that? You mention you are P5317p deletion among several other things which simply is above my head as to what it means or how it translates to your future prognosis if at all. I understand you had a stem cell transplant so maybe what you mentioned has more to do with having a SCT than just MM?? Im likely wrong but just trying to understand MM. In reviewing other posts I've learned about M protein, light chain, heavy chain, lambda ( I hope this is close to what Ive picked up). I am sure this is all important but not so sure HOW important it is. Can you explain what all this means at the end of the day?? Many of you know the MM language well and abbreviate often to save time and space but in my learning curve, its a hugh disadvantage. Is there a site that explains all these abbreviations to assist new MM patients?? Amy help would be greatly appreciated Donna..

https://healthtree.org/myeloma/community/events...