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Though my blood work looks better…Even after ASCT I’m sad to admit I don’t feel any better.
I am Heavy chain A, Light chain Kappa, High Risk.
Stage:R-ISS 2, del 17
My Oncologist wants me to see my Cardiologist to see if I need the surgery to clear the plack. I am afraid of having a stroke from the surgery.
Hold that thought! I will surely ask about the bone tumor involvement/palliative care. and if that is what I have. So far I've been told it was bone marrow. This opens more questions for me to ask… read more
Ileen you have nothing too lose by getting a second opinion and just like everything else there are good and bad Oncologists and you just happened too get a crappy one.
I'm curious why my doctor gets offended if I complain about back pain and other myloema and chemo effects.He thinks because my levels have been brought down significantly far as light chains I shouldn't be having any complaints well that's how he brushes it off from my view.could be wrong though.
HI Chartyise, I will try to answer your question from my personal experience with chronic pain. For the last 35 years I have lived with Lupus (SLE), Fibromyalgia, Scleroderma , arthritis and now I… read more
I've currently been diagnosed with a single plasmacytoma in right tibia, which we'll treat soon. It appears that I may be on the line between starting treatment for multiple myeloma (some indicators are okay, and a few aren't). We're inclined to monitor things carefully and not start treatment for a while, if that is possible
However, the more that I read about the treatment process and side effects, the more I wonder if it is worth it. I'm 73 yrs old, have Stage 3-4 (my GFR fluctuates)… read more
Thank you.
Has anyone had many bone lesions -- and then had SCT? Does SCT help prevent the development of more lesions, or not necessarily?
Apparently when our Syracuse doctor sent a report to our Florida oncologist, he said that my husband has IgA Myeloma. We had never heard it classified this way before, and our Florida oncologist also said that none of his tests showed that. Wondering if anyone here has IgA Myeloma and if so, what test was done to determine that?
Serum Immunofixation Result: Immunofixation shows IgA monoclonal protein with kappa light chain specificity. The result confirmed on concentration. igG normal, igA normal, igM 23 low. S, Qn, Free K+L… read more
We recently had a lady come out to start pallitive care with my dad. She is kind and helpful. She doesn't come as often as I would like. She said at the most it would be once every couple of weeks but… read more
Had my SCT 3 years ago at age 76. I needed to pass a number of physical tests to make sure I could handle it. Check with Medicare again, pretty sure they will cover it
Also you'll find grants are… read more
