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It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
What is CCML
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I do not about cart but I do know it is hard to gett
For me it was subtle and many signs were chalked up to old age and COVID lockdowns. In December 2021 I took a full time job with LOWES in the electrical and plumbing departments. Almost immediately I felt terrible burning in my thighs and sides of the thighs while standing with customers. I consulted with Dr. Google and it said could be the result of sciatica. Then I felt fatigued and told my boss I could only work part time. 4 hours was rough. 5 was a killer. While standing in meetings I was… read more
Hi Mark,
A lot of what you related is the same as I experienced. The genesis of my going to the Doctor was a creek in my neck and skull. He found my bloods were all over the place and so sent me to… read more
Neuropathy is generally permanent. Meds can modify symptoms. Best to keep at bay in beginning if possible. Velcade is esp notorious as a cause of neuropathy.
Hi Marie
A very difficult question without knowing anything about your specifics such as ; diagnosis, stage of multiple myeloma, your age, type of MM whether smoldering, MGUS, full multiple myeloma,… read more
I am taking oxycodone 5mg and it is not helping my back pain. I was in hydrocodone but they took me off because they were afraid it would cause liver damage. What is everybody else taking for back pain.?
I asked my Oncologist about pain meds. She said when I start having pain, she will send me to Pain Management. My mom had a tumor on her spine. They gave her morphine and a fentanyl patch on her hip… read more
Folks says Fred Hutch is the place to go, and everyone says how vital it is to see a myeloma expert, but Fred Hutch will only give an appointment for regular heme group since I have not been formally diagnosed with MM yet. Any advice?
I was diagnosed with MGUS , in2015. My Md was really casual about testing, follow-up ,etc.I actually forgot about it! By July2018, I had cervical deteriorated in my C5, cervical area. My left Femur… read more
If you get a Complete or Very Good Response, please do not get a SCT. It will damage your immune system, most likely forever. You'll also lose your Life Time of Gained Immunities - Your Immune System.
… read more
