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Top 10 search results for "how good boundaries make life with myeloma easier" in Q&A. To see all results and access other features, sign up for free.

Please Repost Article On Boundaries On My Page.

A MyMyelomaTeam Member asked a question 💭
KwaZulu Natal south Africa
A MyMyelomaTeam Member

Thank you for reposting the boundaries article. I think loose boundries come from not wanting to hurt people and also fear of missing out on fun events. Re-defining your new normal is a good thing… read more

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?

A MyMyelomaTeam Member asked a question 💭
Portland, OR

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

A MyMyelomaTeam Member

No, Viagra has been demonstrated to be a cause of melanoma - not myeloma. its active ingredient, sildenafil, more recently has been linked to a possible increased risk for melanoma, the most… read more

Daughter Looking For Supports

A MyMyelomaTeam Member asked a question 💭
Christchurch, NZ

Hi there I’m Ally my father (74 lives alone) was diagnosed with MM a few years ago, but has been getting increasingly worse. If any survivors/battlers are on here, I would like to ask what was the best way you recieved support and in what form. Or for families how did you support someone? Thanks

A MyMyelomaTeam Member

I supported my Dad through 9 years of his myeloma. I was able to go to many of his medical appointments to understand what was happening, learn about drugs, get some bloodwork numbers, etc. My sisters… read more

Palliative Care Vs. Chemo After Over 4 Treatmemt Regimens

A MyMyelomaTeam Member asked a question 💭
Mill Creek, WA

Wondering if anyone else has faced decision to go on palliative care vs.newer chemo options...husband is starting 8th year of continued chemo, never getting deeper than 50% drop in Mspike , but stable for good amount of time on each one. Newer drugs have scary side effects and all his years on chemo are taking a toll on him , he will be 79yo this year, says he wants quality of life, not quantity.

A MyMyelomaTeam Member

When considering palliative care versus continuing chemotherapy after multiple treatment regimens for myeloma, here are some key points from the knowledge base:

Palliative Care
- Focus: Symptom… read more

NEW Drag - TECVALYI Teclisamab

A MyMyelomaTeam Member asked a question 💭
Philadelphia, PA

Hello all - now 4 year in to the journey of MM, I did it all . Bone Meroe , Car-t cell , and every drag possible. I just can’t tolerate those horrible drags more than few weeks , but somehow they kept me alive for almost 4 years - some worked some not - those side effects on steroids is hard !! in November 2022 the FDA approved a drag called teclisamab - it’s not chemical based - so is not chemo , it’s very complicated drag to start or to explain here , but I did go for it and I believe it… read more

A MyMyelomaTeam Member

It seems like you are referring to Tecvayli (teclistamab-cqyv). Here is some detailed information about Tecvayli based on the knowledge base:

Overview
- Tecvayli is a prescription drug approved by… read more

SCT Harvest Cells And Wait Or Do SCT Now?

A MyMyelomaTeam Member asked a question 💭
Lakeland, FL

Diagnosed Aug of 2022 been through 3 cycles of VRD. Stage 3 bone involvement my oncologest says go for it now at 60 years old i think he is right, I have been very blessed with no pain only a fractured rib and bone lesions. I want to do what will work the best, But 3 days into my break and feeling like my old self I do want to put MM down for as long as possible. Experience anyone has had would be helpful

A MyMyelomaTeam Member

Doctors may advise early or delayed stem cell transplants (SCT) based on many factors:

- High-Risk Myeloma: People with high-risk myeloma based on genetic studies are usually encouraged to undergo… read more

What Does A Large LGg Lambda Monoclonal Protein In The Mid Gamma Region Mean Any Thoughts ?

A MyMyelomaTeam Member asked a question 💭
Detroit, MI
A MyMyelomaTeam Member

Excellent answers!

Average Age Of Onset Of Multiple Myeloma

A MyMyelomaTeam Member asked a question 💭
Houston, TX
Can Multiple Myeloma Affect the Brain? Read Article...

Darzolax

A MyMyelomaTeam Member asked a question 💭
Tinley Park, IL

Has anyone declined to add darzolax to the therapy they are already On? I received my clonol seq results. 2 cells per million. Hope everyone is well. Have an active weekend.

A MyMyelomaTeam Member

It seems like you might be referring to "Darzalex." Here is some detailed information about Darzalex based on the knowledge base:

Darzalex (Daratumumab) for Myeloma
- Purpose: Darzalex is an… read more

How Can Lesions Or Tumors On The Bones Be Found On All The Body?

A MyMyelomaTeam Member asked a question 💭
West Monroe, LA
A MyMyelomaTeam Member

Also drink pomegranate juice, cranberry juice and Concord grape juice without all the sugar and definitely without aspartame
Diet drinks just about always have aspartame and that’s horrible for… read more