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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3442 questions
About Our MM Medications And Other Prescriptions/meds, Including Supplements?
A MyMyelomaTeam Member asked a question 💭

Should we space out our medications or is it alright to take one right after another, if instructions do not specify how something is to be ingested. For example; I know someone who takes several supplements all at once. His medications, many times the same way. I know thyroid medication has to be taken on an empty stomach, so that means first pill in the morning.....for me. I have to wait at least 30 min. before I eat or take another pill. Some pills say to take with food, some don't. I… read more

A MyMyelomaTeam Member

Take Thyroids meds on empty stomach early morning, vitamins in morning, and minerals at night. Antibiotics should always be taken according to instructions on box, and pharmacist will advise you on… read more

posted 3 hours ago
Have Not Looked It Up Yet, Bt Has Anyone Had/heard Of ELRA( Renap?). It Is A Byte. Md Proposng Dependng On Bone Biopsy Result.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It sounds like you're referring to Elrexfio (Elranatamab-Bcmm), which is indeed a type of treatment for multiple myeloma. Elrexfio is a B-cell maturation antigen (BCMA)-CD3-directed bispecific… read more

posted 11 hours ago
MGUS And Progression To Myeloma
A MyMyelomaTeam Member asked a question 💭

How long does it take for MGUS to progress to Multiple Myeloma

A MyMyelomaTeam Member

After watching some of Dr Brandy’s talks online, I was amazed at how smart he is. He has MM too and is doing quite well.

posted 8 hours ago
What Do Folks Think About Having A Patient Advocate For Visits, Procedures? Especially When One Is First Diagnosed.
A MyMyelomaTeam Member asked a question 💭

After my Oncologist visit and all the changes we made about issues I have pointed out for years, I got to thinking having a patient advocate, one who has MM for visits would be a good thing. Docs, NP's, assistants tend to be focused on the medical side. Explaining other issues: side effects, experience with procedures, alternatives, etc is not their bailiwick.

A MyMyelomaTeam Member

I amend my first post. My husband was with me for the hour long BMB. It was worse than having a baby.

posted 15 hours ago
Thoughts On Energy Drinks
A MyMyelomaTeam Member asked a question 💭

Does anyone drink energy drinks to fight afternoon fatigue? Is so, what kind?

A MyMyelomaTeam Member

a cup of caffeinated tea.....maybe ice tea? I find that caffeine isn't my friend anymore. Tea can even be too much if I don't dilute it a little

posted 8 hours ago
Going Through The Hardships
A MyMyelomaTeam Member asked a question 💭

I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏

A MyMyelomaTeam Member

@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️

posted 7 hours ago
I Joined But No One Has CNL Chronic Neutrophilic Leukaemia So I Wish To Unsubscribe But Keep Getting These Mails
A MyMyelomaTeam Member asked a question 💭
Has Any Of My Fellow Fred Hutchison Cancer Center Friends Ever Attended The Event In June From Cancer To Wellness?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Too bad it’s not on Zoom

posted 1 day ago
What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

posted 2 days ago
Hello! I Have Been Referred To Hematologist/oncologist For An M Spike. What Should I Expect With The First Appointment?
A MyMyelomaTeam Member asked a question 💭

My test results from my lab states that I have monoclonal spike in the beta region IFE get pattern shows an IgG type lambda monoclonal protein. Can anyone tell me what the normal protocol is from there? Thanks!

A MyMyelomaTeam Member

This site also has a list of 40 Questions to ask your doctor.

posted 18 hours ago
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