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Ask the pharmacist on your care team for advice🙏
I had the CAR T procedure 6 months ago and it worked well for the MM. However, I’m still fatigued, have daily headaches, muscle aches/strain, and food doesn’t taste quite right. Has anyone else had these issues post CAR T? Thanks! Sue
I would like to know what the '(CKD-EPI)', after the GFR means?
So my kidneys are trying to tell me something apparently and it could be many things, according to a search ( age, weight, activity etc ).
SO, should I be concerned? My blood tests from yesterday are just starting to be posted in my patient portal, so I don't know what the rest of the results are yet. I don't usually have a problem, kidney wise.
Thanks. I did buy a new rain coat. I bought vests from the thrift store.
Sending up prayers for comfort, peace, fast healing, strength and remission for you. 🤗💖🙏
If information says there is an M spike in blood. What does that mean in terms of melanoma
Thank you. I am seeing my primary on the 15th and we have not discussed yet.This all occurred after a fall where I fractured my right hip & was hospitalized. I was anemic in hospital for a while but… read more
So, i was watching this Chris Hemsworth (Thor) hosted show called limitless on Disney+. They talked about a process (a byproduct of fasting) called autophagy. The body kills “zombie” cells or mutated cells. There’s no $$$ in fasting for pharma, and there’s not much incentive to do massive studies on diet/exercise. Has anyone seen their M-spike numbers drop due to autophagy? I have heard of some success on breast, colon, and Hodgkin Lymphoma cancer patients that did fasting for chemo… read more
I’m reading Dr Brandy’s book, “Beat Back Cancer Naturally “. Dr Brandy promotes this, but has so many other tips. It’s worth the read.
Paula 🌹
After receiving a CAR-T cell infusion for multiple myeloma, individuals often need to stay in the hospital for several weeks. This period allows doctors to monitor the effectiveness of the treatment… read more
It's great that you're reaching out to connect with others about CAR-T cell therapy. While I can't provide direct experiences from individuals, I can share that many people have undergone this… read more
The context provided does not specifically mention experiences with stem cell transplants in newly diagnosed myeloma patients. However, it does discuss general aspects of stem cell transplants for… read more
I have what is considered high risk myeloma. I didn’t have enough stem cells from the first harvesting attempt of four days so was sent home for two weeks of “rest”.
No it's not just you!! Paul you will do fine with transplant. I refused growth factors like Zarxia and Neupogen after transplant. I got so sick from them at harvesting.
