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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3455 questions
Thoughts On Energy Drinks
A MyMyelomaTeam Member asked a question 💭

Does anyone drink energy drinks to fight afternoon fatigue? Is so, what kind?

A MyMyelomaTeam Member

and to me, artificial sweetener, is too sweet tasting.

posted 1 day ago
Going Through The Hardships
A MyMyelomaTeam Member asked a question 💭

I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏

A MyMyelomaTeam Member

@A MyMyelomaTeam Member Sending 🕊️🙏🫶🕯️

posted 2 days ago
Has Any Of My Fellow Fred Hutchison Cancer Center Friends Ever Attended The Event In June From Cancer To Wellness?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

No never heard of it

posted 18 hours ago
What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

posted 3 days ago
Hello! I Have Been Referred To Hematologist/oncologist For An M Spike. What Should I Expect With The First Appointment?
A MyMyelomaTeam Member asked a question 💭

My test results from my lab states that I have monoclonal spike in the beta region IFE get pattern shows an IgG type lambda monoclonal protein. Can anyone tell me what the normal protocol is from there? Thanks!

A MyMyelomaTeam Member

This site also has a list of 40 Questions to ask your doctor.

posted 2 days ago
Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Betsy,
After using Biotene often, my mom’s mouth got dryer. We did not know that was a side effect. Coconut oil was what the Nurse recommended and it worked? No more dry mouth.
Paula🌹

posted 3 days ago
Does Anyone Have Treatment Suggestions For Low Back Pain? I Have MM And Suddenly My Lower Back Has Tighten Up.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I have heard about Tylenol use and kidney/liver damage. I have had this conversation with my dr. I am trying to keep use of oxycodone to a minimum
I have been to a pain mgmt dr
and was able to get… read more

posted 3 days ago
What Does A Diagnosis Of MGUS Mean And Does It Progress To Myeloma
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

No it doesn't mean you will get myeloma. My older sister has had MGUS for 10 years. She is fine. I'm the one with the high risk myeloma. You can Google the stats on MGUS going into myeloma. The great… read more

posted 6 days ago
Has Anyone Had The Experience Of Hair Loss After Taking Prednisone?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I know, but I was on it for several months, and my practitioners think it’s likely the cause.

posted 6 days ago
Drvd Treatment
A MyMyelomaTeam Member asked a question 💭

April 2nd what I thought was a bad hip and needed replacement turned out to be multiple myeloma. I was walking and my femur just broke...turns out it was as thin as an eggshell due to lytic lesions. I had a rod put in. 2 days later I had a rod put in my other femur. I am finally home walking with a walker. When I was in the hospital they talked about doing drvd treatment. Monday I meet with the oncologists to go over chemo schedule. Has anyone had drvd treatment? What can I expect? I'm… read more

A MyMyelomaTeam Member

MarkParker
👍 thank you for your sharing buddy

posted 5 days ago
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