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Two years after my stem cell transplant, my Multiple Myeloma relapsed. In January 2023, I was put on a "wait list" to receive CAR-T treatment. After 6 months on the waiting list, my myeloma symptoms were getting pretty severe. My M-Spike numbers were increasing rapidly. It would be another 6 to 8 weeks before my T cells would be collected and another 6 to 8 weeks before the cells would be returned and given to me. My primary oncologist and I opted out of the CAR-T program and began the Tecv… read more
We do not know the cost of Tecvayli. It will likely vary with different insurance coverages.
To connect with other patients who are using Teclistamab (Tecvayli) for myeloma, you can sign up at MyMyelomaTeam. This platform is specifically designed for individuals living with myeloma, allowing… read more
Hello....My husband will soon be hospitalized for about a week to begin a dosing ramp up of Tecvayli injections, one of the new biospecific antibodies approved by the FDA in the past couple of years. Has anyone else tried this drug that would be willing to share their experience?
Thanks so much!
Regina our support and our prayers to you and your family. May Jim rest in peace 🙏🙏
Multiple Myeloma - IVIG's have helped me immensely!
It's the IV dose of the IGg antibody. The Tecvali I take lowers it and my white count. I just went to Tecvali monthly because every 2 weeks was destroying my white count. I've been on it since May… read more
Diagnosed in 2003. Started with Revlimid. When it stopped working in was diagnosed 2003.it was watch and wait. Doc put me on Revlimid. Took for about 10 years and it stopped working. 2020 went on infusion of daratubamab with shot of velcade. Then was on Dara in shot form for maintenance. This past spring started carfilzomib infusion with Dara in shot form. Numbers are going up again and Pomalidomide is next step. Have appt with oncologist this week to discuss new regime. I understand this new… read more
Thanks for answering. In the meantime my oncologist had me see the doctor in the transplant dept. Although am not a candidate for stem cell or Cart T procedures he has started me on teclistamab… read more
Some people have light chain only myeloma. No m spike. But they would have an elevated band on immunofixation and electrophoresis. Elevated light chains are not good for our kidneys
New Advances In Medications!
What New Advances are There?
Thanks Donna, you’re always in the know👍🏽❤️
For me it was subtle and many signs were chalked up to old age and COVID lockdowns. In December 2021 I took a full time job with LOWES in the electrical and plumbing departments. Almost immediately I felt terrible burning in my thighs and sides of the thighs while standing with customers. I consulted with Dr. Google and it said could be the result of sciatica. Then I felt fatigued and told my boss I could only work part time. 4 hours was rough. 5 was a killer. While standing in meetings I was… read more
Hi Mark,
A lot of what you related is the same as I experienced. The genesis of my going to the Doctor was a creek in my neck and skull. He found my bloods were all over the place and so sent me to… read more
