Talvey and myeloma | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Talvey"

reset
What Is Talvey
A MyMyelomaTeam Member asked a question đź’­
What Is BCMA-Targeted Immunotherapy for Multiple Myeloma? Read Article...
Side Effects Of Talvey
A MyMyelomaTeam Member asked a question đź’­

I’m starting treatment Monday and will have to be in hospital about a week for monitoring. Does anyone have experience with this?

What Is BCMA-Targeted Immunotherapy for Multiple Myeloma? Read Article...
A MyMyelomaTeam Member

Numbers are good however I am dealing with some side effects.

Anyone Had TALVY?
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
Does Anyone Have Experience With Loss Of Taste Resulting From Treatment?
A MyMyelomaTeam Member asked a question đź’­

I'm experiencing 90% loss of taste from daratumumab (Darzalex) and talquetamab (Talvey). This is not an unusual after effect of both infusions, but I'm wondering if the taste fully returns after a defined period of time or are there remedial steps I can take (e.g., acupuncture) that help help make eating more enjoyable?

•
View reactions
A MyMyelomaTeam Member

I have constant metallic taste in my mouth. I have been eating more spicy foods BUT I have a stomach problem now and it feels like I am developing an ulcer. Just had an endoscopy and I have an… read more

I Had The SCT In Dec/Jan And Both Hips Were In Pain Afterwards The Pain Is Centralized To Right Hip, Both Hamstrings,calves, And Ankles.
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

I'm sorry to hear about your pain. I didn't have any new pain after my SCT. I'm going to a new pain doctor. Mine retired.

Anyone Had Bispecifics?
A MyMyelomaTeam Member asked a question đź’­
•
View reactions
A MyMyelomaTeam Member

So happy you are in remission Colleen! Monday I start the Talquetamab and hoping hospital stay will be 5 days. I live 3 1/2 hours from Moffitt so none of this is convenient is why I’m praying once I… read more

Seeking CareGiver Counseling In Hudson Valley NY (in Or Close To Poughkeepsie)
A MyMyelomaTeam Member asked a question đź’­

I am a CareGiver for family member with Multiple Myeloma. I could use counseling help from professional familiar with this issue. For face-to-face, must be in the Hudson Valley (in or close to Poughkeepsie). Someone associated with BCBS. Open to remote counseling. Thank you!

•
View reactions
A MyMyelomaTeam Member

Healthtree has myeloma coaches for caregivers.

Autophagy, Fasting, And Disney +
A MyMyelomaTeam Member asked a question đź’­

So, i was watching this Chris Hemsworth (Thor) hosted show called limitless on Disney+. They talked about a process (a byproduct of fasting) called autophagy. The body kills “zombie” cells or mutated cells. There’s no $$$ in fasting for pharma, and there’s not much incentive to do massive studies on diet/exercise. Has anyone seen their M-spike numbers drop due to autophagy? I have heard of some success on breast, colon, and Hodgkin Lymphoma cancer patients that did fasting for chemo… read more

•
View reactions
A MyMyelomaTeam Member

I’m reading Dr Brandy’s book, “Beat Back Cancer Naturally “. Dr Brandy promotes this, but has so many other tips. It’s worth the read.
Paula 🌹

Car T
A MyMyelomaTeam Member asked a question đź’­

Good morning! Has anyone had the Car t Therapy????
It appears that my hubby is coming out of remission. f*&^&!!!!
We are looking into Car T since he has had tandem SCT's and his options are either ; Car T, or trying meds to see if numbers get better. I have asked the Doc to do bone marrow biopsy to confirm but his urine is loaded He is light chain MM.

•
View reactions
A MyMyelomaTeam Member

Nice! Hugs

Deciding If I Should Opt For Stem Cell Replacement. Local Oncologist/hematologist Is Recommending No. Specialist Says I Can. Thoughts?
A MyMyelomaTeam Member asked a question đź’­

77 yrs old, relatively good physical condition. 2 weeks into my 3rd cycle of Velcade and Darzalex. KAPPA/LAMBDA LIGHT CHAIN RATIO has gone from 4.42 to 2.07 in 3 months. Abnormal protein band has reduced from 1.3 to .3. Fatigue and Bone pain have subsided. Walking daily.

•
View reactions
A MyMyelomaTeam Member

I say go for it! It’s the best way to get as close to a cure that is available. “I” don’t qualify. My cardiologist said my heart would not take it. When I had Revlimid and then Velcade they toxified… read more