Quick Links
Resources
About MyMyelomaTeam
Powered By
I had 10 straight days of radiation to two areas of my spine, right hip and pelvis. It did cause some mild pain and tiredness, but really didn't have much side effects.
Cheryle
It has taken me 4 years to try and understand Multiple Myeloma and I feel like I am just starting. There is a lot to learn. Getting a MM Oncologist who you can trust is the best thing you can… read more
I am taking oxycodone 5mg and it is not helping my back pain. I was in hydrocodone but they took me off because they were afraid it would cause liver damage. What is everybody else taking for back pain.?
I asked my Oncologist about pain meds. She said when I start having pain, she will send me to Pain Management. My mom had a tumor on her spine. They gave her morphine and a fentanyl patch on her hip… read more
Radiation may be used to treat areas of bone damaged by myeloma that have not responded to chemotherapy and/or other drugs. I have had several rounds of radiation as none of the drugs really worked… read more
Depending on what you want, stem cell harvesting after one dose of chemo, then re-administering your own cells can work for a long time. My high school friend had 80% of her bone marrow affected by… read more
sct was may 2023 , I was in remission till January 2024 m spike rise to 0.1 but all test good , after my gum start to swallow and I Started have bump on the roof of my mouse ,oral biopsy confirm plasmacytoma. today I met with my mm specialist he give me choices :bispecific or car t transplant or he gonna add cytoxan and pomalyst to darzalex faspro and dexamethasone, he told me to stop revlimid 10 mg. he referred me to oncology radiation. I am so confused now my appointment with radiology this… read more
Samar it sounds like you are seeing a myeloma Specialist? I hope we aren't getting you more nervous and confused. Seattle has some excellent doctors.
Dry, ashy, and peeling skin can be a common issue for individuals undergoing treatment for multiple myeloma, particularly those receiving radiation therapy or chemotherapy. Here are some tips to… read more
Bill
For me, the treatment might be worse than the disease. I have 2 genes that affect metobolism of drugs, so they become toxic inside me. I'm reading Dr Brandy's book "Beat Back Cancer Naturally".… read more
I'm in remission after SCT and expecting to start maintenance with Revlimid in the next couple of weeks. But - I missed the part of my PET scan review months ago where I had a T12 compression fracture (I heard about the broken ribs.). I still have pain and I walk with Nordic Walking sticks if I'm doing more walking than just basic around the house. I sense that my back isn't strong enough to hold me up. What recommendations have your doctors given you for similar symptoms? Is there a… read more
Hi Sara, I'm not sure, but a radiation oncologist could probably help you. Physical therapy is probably going to want specific orders. 💕
Myeloma causes our bones to release osteoclasts that breaks them down causing weakened bones that are painful and can fracture easily. Getting our myeloma under control, weight bearing exercises, and… read more
