Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
Hi Donna, I do get Darzalex faspro every month. I’m waiting for my Dr to call with what he wants to do! 🙏🏻🙏🏻🙏🏻
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I take Dara, revlimed, and dexamethasone for smm
I am taking Daratumab, Dexamethasone and just added Pomalyst this week.Hoping and praying for improvement of myeloma.
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
I hope things go well for you
Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.
I would like to learn: who are or were treated with “Kyprolis (carfizomib), Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you now? (before, during after?
It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....
Kappa light chain MM
I too have Kappa Light Chain MM; after 6 months on Revlimid and Velcade , plus Dexamethasone I am now one year in remission. Velcade gave me a rash at injection site. Dexamethasone gave me a terrible… read more
One fellow in our support group has been on Revlimid for 6 years without serious side effects. One lady had issues and dosage was cut back.