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my CSF protein total is high after a lumbar function procedure ,is anybody has that before,thanks
Greetings from Alaska Samar I’m just checking on you. how are you doing? Have you met with the doctors and you guys have come up with a plan of action please share how you’re doing and your course of… read more
I just wanna share with you that's carfilzomib after 2years cause me hemolysis and I was life threatening for 8 days at hospital, they open my neck put tube and do for me plasma exchange for 6 days on a row . is anyone experience hemolysis before? thanks
Yes so sorry they put you through that I’ll say prayers for your quick recovery!!!
Hi Bonnie, did they do a Daratumab specific immunofixation to test your response? If they didn't, that m spike could actually be from the Darzalex.
If information says there is an M spike in blood. What does that mean in terms of melanoma
Thank you. I am seeing my primary on the 15th and we have not discussed yet.This all occurred after a fall where I fractured my right hip & was hospitalized. I was anemic in hospital for a while but… read more
Edith,
It’s nice your MM is stable. Mine is high risk, so it’s adding and deleting, which is not so good. I’m doing well by the grace of God.
Paula 🌹
Plasma cell leukemia
Deb,
I Hope someone can answer your question and give you advice 💕
Paula 🌹
@A MyMyelomaTeam Member & @A MyMyelomaTeam Member Thank you ladies for your replies and important info! I totally agree with you both and will still be working on getting a 2nd opinion and seeing a… read more
Yes, multiple myeloma (MM) and AL amyloidosis can sometimes occur at the same time in the same person. Both conditions arise from plasma cells, and while they are distinct diseases, they share some… read more
It’s not Multiple Melanoma, it is Multiple Myeloma
Melanoma occurs when the pigment-producing cells that give color to the skin become cancerous
Multiple Myeloma is a cancer of plasma cells.
The… read more
Yes, multiple myeloma (MM) and AL amyloidosis are related conditions, both involving plasma cells. In AL amyloidosis, abnormal plasma cells produce misshapen light chain proteins that form amyloid… read more
