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Had SCT 2/22 and leukemia is in remission, however multiple myeloma is not. Doctors at John Hopkins are taking a wait and see attitude because they say the myeloma hasn’t changed. I’ve lost about 90lbs and have no energy most days. My spleen is enlarged and the doctor says that’s what’s causing the weight loss. My appearance to me looks extremely frail. Appetite is good and I’m taking in a lot of protein but still no weight gain. Doctor says that he’s going to talk to the myeloma team and… read more
Hi Alan. Ask your doctor to check your blood sugar and thyroid as well. I pray your dr will take your concerns seriously and get to the root cause of your weight loss. Hugs
Protein, like nuts, yogurt, cheese
That's a great question! @A MyMyelomaTeam Member (& I'm sure a lot others) has a lot of good information on his page regarding that.
I would also consult with your doctor/care team regarding this… read more
Hi everyone
Can anyone in the MMTEAM share about weight loss,appetite change and how to maintain the body weight.l have lost around five kilograms along my chemo n treatment, thank you
Thank you very much Tammie for the sharing and advice I appreciate it 💯👌🙂
I keep reading that we need to eat a whole food plant based diet. Leafy greens like spinach have calcium that help strengthen our bones. I don't tolerate calcium supplements, so I drink organic milk… read more
Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸
I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more
She is 57 and broke a hip caused by MM. All of her numbers were good except kappa M protein. Good health otherwise and active.
The plasma protein is low, but MM can do crazy things very quickly. It's always her choice as to treatment.
When I have low iron I work on my nutrition. Same for my albumin and total protein scores.
It is under people beating cancer, I believe. Sorry
My husband was diagnosed in January and began a triple drug treatment of Dexamethosone, Revlimid and Isatuximab infusion in February.We are at the end of cycle 3, but his M protein decrease is slowing. Oncologist team has suggested adding weekly valcade shot to his treatment plan to get his number down to the threshold that they'd like for him to have a Stem Cell Transplant. Has anyone else had a similar experience?
Thank you Paula! Bobs Red Mill nutritional yeast is a staple in our pantry and is headquartered minutes from our house! Great suggestions appreciate it!
