I am beginning treatment with Darzalex what have people experienced with this treatment? I had a Stem cell implant 18 yrs. ago and was in remission until now. Tried pomalyst and ninlaro with no sucess.
Dr.Stan

Is it common for a doctor to see that the kappa light chain is out of normal range and the IgG is raising and the M spike is stable? She’s keeping me on the same medication 4 mg of Ninlaro every Wednesday for three weeks and 21 days on 25 mg of Revlimid 4 mg of decamethazone on the Wednesdays that I take the in Ninlaeo?

I’m confused and perplexed.

Is there a backup treatment if revlimid rash (which is bad) can’t be controlled. Any ideas how to best dean with revlimid rash?

I would like to learn: who has or had been treated with “Ninlaro or Ixazomib”, Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you feeling? (before, during after?

It is so bad that I now have to have a cane to walk.

Dr wants to put me on revlimid(10mg) and ninlaro (2.3mg) as maintenance after stem cell transplant and in total remission. Does anyone have experience using these drugs as maintenance. I have severe neuropathy from the early days of chemo(velcade) otherwise I feel great right now.

I’ve been taking Ninlaro for 1 year and my numbers are creeping up. My Dr said they are fluctuating. To me that means up and down.

If you’ve taken Ninlaro, Dex and Revlimid how long did it work for you?

She even said to me she believed that the Revlimid was keeping the numbers stable. Well apparently not.

I’m scared of new medicine that’s going to knock me on my butt again.