Quick Links
Resources
About MyMyelomaTeam
Powered By
In the last few days, someone spoke about their tummy growing round and protruding. They had a name for it. I don't know who spoke about it. We have been blaming my husband's 'pregnant belly' on Dara, but if this is actually something else, we'd like to know. It bothers him quite a bit. First, he just doesn't like it! He has trouble bending over...pushes on his lungs, making it hard to breath. His clothes don't fit, I'm not a skinny girl , so I get it, but the breathing is worrisome.
Steroids! Ask to drop the dose. See an endocrinologist.
I would not be surprised. I got Cushing’s syndrome from high corticosteroids. They really messed me up.
I have been on 9mg of hydramoraphorm long acting morning and night for almost 2 years. I still have bad back and hip pain and also have to take break throughs sometimes. I’m worried about dependency and also withdrawal symptoms when coming off. Any advice is appreciated.
Talk to your pain management specialist. They may prescribe something else, like a fentanyl patch during the transition. I stopped taking a high corticosteroid and got Cushing’s syndrome, so it’s… read more
Weight gain can indeed occur with treatments involving Revlimid (Lenalidomide) and dexamethasone, which are commonly used in the treatment of myeloma. Revlimid can cause side effects such as swelling… read more
I have no idea how to control sweating but I have been sweating a lot since I started treatment. My guess is that it could be due to nerve damage because I have a lot of peripheral neuropathy.
I currently have redness on my face that looks like windburn or sunburn. Has anybody experienced super dry flaky skin post SCT? Any recommendations for skin care products? Thank you!
I just started Dapsone, so here’s hoping!
I am having recurrent Post Vitreous Detached of the Retina. I get flashing in my eyes. The Retina Specialist thinks it is from my past high corticosteroid use. I really don’t want to go blind.
The diarria was very bad for me, Dr.Nuka at emory put me on 4 tablets a day (625mg) of colesevelam hydrochoride also .called whocol. Much improved. Maybe ask about it
I have always struggled with my weight. I just had to accept the weight gain while I was taking dexamethasone.
I would ask a podiatrist as there are various types of neuropathy and treatments may be different.
I was taken off ninlaro 2 yrs ago. This week I had my first M spike since transplant (2015). Is it likely that I will be put back on ninlaro?
That’s a good question for your doctor. You have to get control of your myeloma so there’s going to be an answer for sure. Best of wishes you get in remission again soon!
