Hi Robert, Sorry to hear that you’ve progressed. When you reported 4 per million from a BMB, did you also get a blood sample clonoSEQ and if so, what did it show?

I don’t know if it can help you but at my Story, I’ve detailed the Supplements along with changing to an all Plant Based Diet, that I feel have helped me. It’s worth a look.

Take a look at Dr Brandy’s $10 Ebook - Beat Back Cancer Naturally. It’s a great resource as to how and why a Plant Based Diet can make a very hostile environment for cancer, helping to make our treatment meds work much better.

Hopefully some of this can help you return to Neg and allow you to use less MM Meds

All the Best

Hi Robert - I've owned my own small business for 43 years and it's still going, though smaller.

Started in the 70's as a Field Service Tech - I taught myself electronics from some SAMs books. This was after my first business failed - I owned a bakery - glad it didn't become my life's work. First went to 3M, then another company doing Field Service on $500K Imagesetters & Scanners. From there, I started my own business, integrating computers, designing circuit boards and developing software. At our largest, we were 10 people - currently 4. We make very specialized software for InkJet printing that we Lease to our customers and customize to their exact needs. I continue to build small custom circuit boards that don't exist as off-the-shelf solutions. Specialized Pulse Width Modulators (PWM) to control other equipment. I also do 3D Cad design for Lighting Fixtures I have fabricated - sheet metal, black powder coat finished. OnShape is a Free CAD Software that is amazing for sheet metal and routed metal work design. It produces .STEP files and drawing .DXF that are ready for import to the sheet metal production machines. I delivery production ready files that they never have to modify - then in a few weeks, I get commercially finished housings for my equipment, I then assemble and out the door.

@A MyMyelomaTeam Member I’m slowly converting to a plant based diet. I’ve noticed that my digestive problems seem to be less. I’ve cut out processed foods, especially refined sugars. Processed foods are so bad for you. The Clonoseq results from bloodwork seem to track somewhat with the results from the BMB. My oncologist indicated that the BMB results are still more accurate. What type of engineer are you? I myself am a Mechanical Engineer, even though I worked in the Aerospace field. I’m also a pilot, and flew for 23 years at Boeing Flight Test.

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A MyMyelo...

I have Kappa Light Chain MM, with a 11;14 genetic abnormality. I’ve been in treatment for almost 6 years. I’m currently on 4mg of Ninlaro, once a week for three weeks, with one week off. I take 20 mg of Dexamethasone with my Ninlaro. I was on 15mg of Revlimid, now I’m on 20mg of Revlimid daily for three weeks, with one week off. I was at MRD with a Clonoseq of zero. However, my last Bone marrow biopsy showed a Clonoseq of 4 cells per million. So my oncologist increased the Revlimid dose from 15mg to 20mg. My next biopsy is scheduled 3 months from now. I get a bone marrow biopsy every 6 months. Due to the genetic abnormality, I’ll be in treatment for the rest of my life.

The ClonoSEQ on bone marrow is the only one my center uses. I'm fine with that. I believe it is more accurate.