Have had a great six weeks, felt like I was healed. Moving around well, energy, traveled, and it came out of no where- built up last 3 days, today being the worse.
Thanks- I have two more days of Revlimid and velcade on Thursday. You may be right. I never had a fractured or lesions, PET was clear. I hope I didn’t do something 😬gonna take a bath in a little and I did make some fresh juices, my m-protein stayed at 0.2 gosh I’m so close. 8 1/2 months, got to get there. Glad you are doing well. It makes me very hopeful this will work. 🙏
For me the pain appears to come out of nowhere. You are correct when you say that the disease has a mind of its own.
Hope you get to feel much better
Hi Andrea, glad you have been feeling better! That’s awesome!! I know that the fractures I had in my left arm ache with the cold. If I just keep it warm I seem to be fine. Aches all over could be the change/reduction in meds. I would feel that way for a couple days each month towards the end of induction therapy. But now on maintenance I haven’t been having that issue 🤞🤞 I think the meds can cause all kinds of abnormalities. Hope you feel better! Stay warm 👍🤗
Andrea7
I am glad your pet Scan was able to determine everything ok especially after you were so great, then you started having alot of pain. I'm learning this disease has a mind if it's own and about the time you think you have gotten a rhythm down, then it throws you a curve. I wish I would have been as fortunate. I too was feeling fabulous for about 3 months, in remission, then suddenly out of nowhere my pain was super bad. Unfortunately my pet Scan revealed the cancer is back so I'm on a new chemo drug I started several weeks ago. I was so disappointed but trying to somehow stay positive. I got covid as well last week so. I've missed a couple of treatments. Im so glad you are doing well..I hope your symptoms get better.