HERE IS WHAT I FOUND OUT ABOUT THE POSSIBLE SIDE EFFECTS:
NINLARO may cause serious side effects, including:
Low platelet counts (thrombocytopenia) are common with NINLARO and can sometimes be serious. You may need platelet transfusions if your counts are too low. Tell your healthcare provider if you have any signs of low platelet counts, including bleeding and easy bruising.
Stomach and intestinal (gastrointestinal) problems. Diarrhea, constipation, nausea, and vomiting are common with NINLARO and can sometimes be severe. Call your healthcare provider if you get any of these symptoms and they do not go away during treatment with NINLARO. Your healthcare provider may prescribe medicine to help treat your symptoms.
Nerve problems are common with NINLARO and may also be severe. Tell your healthcare provider if you get any new or worsening symptoms including: tingling, numbness, pain, a burning feeling in your feet or hands, or weakness in your arms or legs.
Swelling is common with NINLARO and can sometimes be severe. Tell your healthcare provider if you develop swelling in your arms, hands, legs, ankles, or feet, or if you gain weight from swelling.
Skin reactions. Rashes are common with NINLARO. NINLARO can cause rashes and other skin reactions that can be serious and can lead to death. Tell your healthcare provider right away if you get a new or worsening rash, severe blistering or peeling of the skin, or mouth sores.
Thrombotic microangiopathy (TMA). This is a condition involving blood clots and injury to small blood vessels that may cause harm to your kidneys, brain, and other organs, and may lead to death. Get medical help right away if you get any of the following signs or symptoms during treatment with NINLARO: fever, bruising, nose bleeds, tiredness, or decreased urination.
Liver problems. Tell your healthcare provider if you get these signs of a liver problem: yellowing of your skin or the whites of your eyes; pain in your right upper-stomach area (abdomen).
Other common side effects of NINLARO include low white blood cell counts and bronchitis.
Tell your healthcare provider if you get new or worsening signs or symptoms of the following during treatment with NINLARO:
skin rash and pain (shingles) due to reactivation of the chicken pox virus (herpes zoster)
blurred vision or other changes in your vision, dry eye, and pink eye (conjunctivitis)
These are not all the possible side effects of NINLARO. Talk to your healthcare provider for medical advice about side effects. You may report side effects to Takeda by calling (Phone number can only be seen by the question and answer creators) or emailing (Email address can only be seen by the question and answer creators) or to the FDA at 1-800-FDA-1088.
Hope this clarifies it. God Bless, "Teece"

My neuropathy from being on Velcade was aggravated by Ninlaro so I was taken off it. Now just on Darzalex, Revlimid and dexamethasone (2 days a month with Darzalex injection).

My husband had a bad rash and was finally taken off it. Lots of people I know have had few problems with it. All the best😃

Thank you

Were you on an antiviral medication such as acyclovir to help prevent shingles?
I have been on acyclovir since my diagnosis in 2015 and ii was on ninlaro as a maintenance drug. I didn’t get shingles.