My husband was on revlimid, ninlaro and dex. He kept getting respiratory infections and rashes. They decided to stop ninlaro and dex. Eventually they lowered his revlimid to 5 mg. He is still in a remissive state 5 years later.

I was not able to stay on revlimid as it caused a hearing loss for me. I am now on Dex, 15mg three times a month , Drazalex Faspro, and Ninlaro (2.3 mg) every other week. I have never had a stem cell transplant or a Car-t. I have had Pomalyst and Velcade in the past, but did not tolerate them at all.

Edith are u in remission?