I Am Scheduled For CAR T Therapy In Late February | MyMyelomaTeam

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I Am Scheduled For CAR T Therapy In Late February
A MyMyelomaTeam Member asked a question 💭

My cells are being genetically engineered right now. I am wondering if any of you have been through the procedure and have any advice or feedback you are willing to share. It is somewhat daunting…but my best chance…it will be Carvykti. Thanks!

posted January 21, 2023
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A MyMyelomaTeam Member

Thank you for your feedback! So many of the possible side effects are scary…but I have no choice because my high risk genetics are unable to keep me in remission…my labs are getting worse and worse, my pet scans show severe disease progression…so I am giving this my best shot! I am strong and will continue fighting…

posted January 23, 2023
A MyMyelomaTeam Member

I had Car T Therapy it will be 2 years in February. It put me into remission again after 1 1/2 in remission from Stem Cell Therapy. First week was good then near the end I got a high fever that had to be treated with antibiotics. I eventual had to come back because I got cdiff which was cleared up with another antibiotic. I also got a partial facial palsy of the right side of my face which cleared up a week later after several tests. I am very happy with results of the Car T for me it was life or death.

posted January 23, 2023
A MyMyelomaTeam Member

The Car T Therapy I got attacks Myeloma cells on two different locations. If one location mutates its chances are high that second site will not.

posted January 25, 2023
A MyMyelomaTeam Member

Good luck. I believe CAR-T cell therapy will lead to the cure. I. Hoping I qualify for a trial when I relapse.

posted January 24, 2023
A MyMyelomaTeam Member

Good Luck and a long remission.

posted January 24, 2023

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