weighing the risks and benefits of myeloma treatment options and myeloma | MyMyelomaTeam
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Is There Some Point When You Say Enough Is Enough And Discontinue MM Treatment? I’m One Year Into Treatment.
A MyMyelomaTeam Member asked a question 💭

Though my blood work looks better…Even after ASCT I’m sad to admit I don’t feel any better.
I am Heavy chain A, Light chain Kappa, High Risk.
Stage:R-ISS 2, del 17

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A MyMyelomaTeam Member

Check with your Dr. I was offered medication vacations. If your high risk that may be a good option. I was on revlimid almost 8 years for maintence. Now off all meds due to having small strokes. I was… read more

For High-risk SMM, My Oncologist Recommends RVd Treatment. At Age 77, QoL Is More Important Than Quantity. What If I Reject Treatment?
A MyMyelomaTeam Member asked a question 💭

Have several co-morbidities for which I use 10 oral and 3 topical RX meds. Concerned about drug toxicity and interactions.

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Stages of Multiple Myeloma Read Article...
A MyMyelomaTeam Member

Agnes
I watched my mom suffer through treatments for ovarian cancer. It was awful. I’m told MM treatments aren’t as bad but I read about side effects all the time. In the end my mom said she couldn’t… read more

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

What is CCML

I Had CAR-T Cell Therapy Last May. Went Into Remission In August. In March My Kappa Light Chain Numbers Are Climbing. What Is My Option?
A MyMyelomaTeam Member asked a question 💭
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7 Symptoms of Multiple Myeloma Relapse To Look Out For Read Article...
A MyMyelomaTeam Member

How was the Car-T treatment?

What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

Hi There Can Anyone Explain The CAR T Cells Therapy? I Need To Know………
A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Larry I am sending you lots of hugs, stay strong and well.

Bone Marrow Transplants
A MyMyelomaTeam Member asked a question 💭

My doc is encouraging a transplant and not giving me much info about where to do it. Should I get a second opinion as to whether I need one

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A MyMyelomaTeam Member

My oncologist in Lake Charles always said I needed sct but never said I had achieved remission so after learning more sct and getting over the fear of it after 1 year of induction therapy 4 drugs dexy… read more

The Treatment Cycle For My MM Is Just To Finish Its Fourth Cycle In 5days Along With Tests And PET . The Doctor Is Insisting On Stem Cell .?
A MyMyelomaTeam Member asked a question 💭
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Treatments for Myeloma Read Article...
A MyMyelomaTeam Member

I typed wrong. @A MyMyelomaTeam Member is what I meant.

Neuropathy Treatment
A MyMyelomaTeam Member asked a question 💭

Has anyone heard of or tried Combined Electrochemical treatment (CET) for neuropathy? I have a consult tomorrow with Loma Linda Medical Center here in Southern California to see if is something I would benefit from. Insurance doesn’t cover it, but the consult is free so going to hear what they have to say.

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A MyMyelomaTeam Member

Maybe ask why it is not covered?

I Am Told I Need To Have A Tooth Extraction And Either An Implant Or A Bridge. Any Experience With This?
A MyMyelomaTeam Member asked a question 💭

I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .

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A MyMyelomaTeam Member

Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more