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What is CCML
Fatigue and abnormal blood test
Chris,
Do you have an Oncologist? That’s who you need to talk to.
Paula 🌹
My car t lasted for a year and a half. I was very happy! Now I’m on a new drug that I’m happy with. It’s been over a year.
I do not about cart but I do know it is hard to gett
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
I’m on maintenance of 5Mg, my pain will come in my ankle, hip or back through the end of my cycle, I will take Dexamethazone 4mg for a couple of days that seems to work for me
It was discovered that I had thyroid cancer when I was diagnosed with MM (June 2023). I had my thyroid removed (in October 2023) 4 weeks before my Stem cell transplant (November 2023). Now it appears… read more
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more
I was diagnosed with multiple Myeloma in April of 2021 after several spinal fractures were found. I had a stem cell transplant in Nov 2021. I was on Darzalex and Revlimid, but recently went off the Darzalex. I also no longer take dexamethasone or Acyclovir. I am in very good partial remission. I get a Zometa infusion every 3 months .
Bev , my husband has had two teeth pulled by an oral surgeon. We felt very comfortable with his knowledge of bone strengthening drugs and myeloma. My husband has not inquired about an implant. They… read more
So the idea of cure got me thinking after I recently relapsed after a SCT. I have said this before, why call it a SCT when the real action is to use high dose chemo/poison (use that word poison in front of your oncologist and watch their reaction) to eradicate ALL of your bone marrow
Now use stem cells to regrow marrow. How/why does one single cancer cell come back and eventually clone and multiply? I though the Melphalan killed it all. So maybe a few survived and hid from the maintenance… read more
I get tested every three months.....so far and I realize that there is not need to do otherwise so far. I...would like to be tested monthly because lately, changes seem to be coming in that I'm not… read more
