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So confused, it took drs. 6 years to find anal cancer at a stage 4, how is this smoldering?
The 2 cancers are unrelated
And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests
Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more
Right now my parathyroid and calcium are too high. I'm waiting for an appointment with an endocrinologist.
Thank you for your information. I will check it out!
Thank you for that very informative explanation @A MyMyelomaTeam Member !
Thanks for sharing!
Karla
💪🏾💙
A lot can be done with the urine test sample to figure out what is the problem you have( kidney,liver bladder,infection)
Apparently when our Syracuse doctor sent a report to our Florida oncologist, he said that my husband has IgA Myeloma. We had never heard it classified this way before, and our Florida oncologist also said that none of his tests showed that. Wondering if anyone here has IgA Myeloma and if so, what test was done to determine that?
Serum Immunofixation Result: Immunofixation shows IgA monoclonal protein with kappa light chain specificity. The result confirmed on concentration. igG normal, igA normal, igM 23 low. S, Qn, Free K+L… read more
I see this going up.
I have a hard time getting any information out of my Oncologist.
Any suggestions on how to get information out of her.
All
She says is we are monitoring at times she says I don’t have Multiple Myeloma, and other times she does say I have Multiple Myeloma. So confusing.
I am taking Revelmid 15mg.
Hi Vince, are you able to get access to your patient portal? It helped me to look up my labs so I could understand why they were too low or too high.
This is a better defined test of the Kappa and Lamda heavy and light chains
This test is available for all Ig types. It more accurate than SPEP and IFE
If so, where are you getting it from and is it covered by insurance
I’ll be looking into that and add to this Post
Mass Spectrometry Testing (MST) is a far more accurate way to test for MM activity but I think it’s only available at limited facilities
If you’re getting MST, where ?
Thank you @A MyMyelomaTeam Member I'll definitely do that!
Has anyone found a good form either online or printable to track myleoma blood work
Kathryn, I have good patient access as well. I see my results the same time my doctor does. I guess some facilities don't have a patient portal yet.😏
