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Has Anyone Had CAR-T Cell Therapy? Transplant?
A MyMyelomaTeam Member asked a question 💭

I would like to know a little more of what to expect.
CRS syndrome?

A MyMyelomaTeam Member

I'm in process of car t.. had my cells removed 4 weeks ago..I start rest of process January 26th in nyc..I need to stay in ny 35 days,that bothers me more then procedure..I'm not a city guy..I… read more

If There Are Any Of You Who Have Gone Through The Car-T Transplant Procedure, What Was Your Experience Like?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I had a stem.cell transplant took 30 days. Bad not in hospital
Sick as a dog.

How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
A MyMyelomaTeam Member asked a question 💭

Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings

A MyMyelomaTeam Member

Well, Ms. Ryan, an interesting question. Causes one to reflect on the joys of living. I've not heard this concern with male enhancement drugs. At my age clinical proof of deleterious effects would not… read more

Has Anybody Put Multiple Myeloma Into Remission Through A Change In Lifestyle?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Kim, how much chemo did you go through? How was it?
Did you do radiation? If so how was it? 🤔

Does Anyone Here Smoke With Mm, If So, How Or Does It Makes It Much Worse?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Camelia, it's hard to quit smoking. Especially since it probably helps with anxiety. My sister used the nicotine patches. Sending hugs 🍂🍁🥰🙏

What Are Some Successful Fatigue Preventives While Taking Ninlaro And Dexamethazone?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Hey Donnie, exercise is supposed to help treatment related fatigue. I would ask about the lowest dose of dexamethasone you can get away with. Maybe ask about a mild sleep aide when you have to take… read more

Yes
A MyMyelomaTeam Member asked a question 💭

I have smoldering MM but don’t see a lot of others here that might be experiencing it??

A MyMyelomaTeam Member

Hi Kathy- I am lucky I can tolerate tumeric well. I do take 8 grams. I do them across the day so I can prevent stomach issues.

Has Anyone Found Anything That Helps With Lack Of Energy?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I'm trying to follow Dr Brandy's advice from his book "Beat Back Cancer Naturally". The supplements and change of diet are giving me more energy. I vacuumed the whole house today, walked both dogs… read more

Can Multiple Myeloma Treatment Cause CMML
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

What is CCML

Ok, Is 1.80 Good For Lamda Free Light Chains ? In November It Was 17.7 Up From 11 In October
A MyMyelomaTeam Member asked a question 💭

And is 0.34 kappa good? in December it was 0.2 alot of folks seem so more knowledgeable about tests

A MyMyelomaTeam Member

Netta, please ask for a printout of your lab work that is ordered by your oncologist every time they do your monthly doctor's labs. Keep them together in a loose-leaf binder organized by date. This… read more