Has Anyone Gone Through CAR-T Treatment? If So, Where And What Are Your Thoughts About It? | MyMyelomaTeam

Connect with others who understand.

sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anyone Gone Through CAR-T Treatment? If So, Where And What Are Your Thoughts About It?
A MyMyelomaTeam Member asked a question 💭
posted June 14, 2021
View reactions
A MyMyelomaTeam Member

Good luck to you. I’m very happy to hear about your remission. We keep our hopes up!

posted July 14, 2021
A MyMyelomaTeam Member

My husband came home from the hospital on day eight and was readmitted on day 10 because of a fever. He just came home again on day 19. They believe he had some kind of bacteria but it is so minute that they are not sure and they sent him home on anabiotic‘s. It could be a lab mistake. When he was discharged today he was told he wouldn’t drive for three months it was a shock to us. The information that we received originally said 30 days. If he has not had any seizure and is not any meds for a seizure I really don’t understand why. I wish my husband was only dealing with myeloma. Even if this works he has so much pain because of arthritis that was caused by chemo meds.Honestly I don’t think this is ever going to end.

posted June 14, 2021 (edited)
A MyMyelomaTeam Member

I just went through Car T Therapy in March I am presently in remission. I had a fever and was given antibiotics. I contracted C diff from use of intravenous use of antibiotics. I also got after release facial palsy which cleared up after several weeks. I live in New York State and participated a Clinical Trial at Strong Memorial Hospital in Rochester NY.

posted June 17, 2021
A MyMyelomaTeam Member

My first week in the hospital after Car T Therapy was good no side effects. My second week I had 2 todays of fever which triggered me getting intravenous antibiotics. I was released after my second week from hospital. I would say about 4 days after my release I got partial face palsy which lasted about 2 weeks. I also got Cdiff due to the antibiotics I got at the hospital which also went away after I took oral antibiotics. I am presently in remission due to my Car T Therapy no lasting after effects

posted July 14, 2021
A MyMyelomaTeam Member

sorry eddie, i just saw your other answers on how long you were in the hospital. But I am curious about any issues in the first 2 weeks after transfusion.

posted July 11, 2021

Related content

View All
I Was Diagnosed A Year Ago With MM. I Consider Montgomery, AL A Major City To Be Treated In But Wonder If I'm Getting The Best Care
A MyMyelomaTeam Member asked a question 💭
Hi There Can Anyone Explain The CAR T Cells Therapy? I Need To Know………
A MyMyelomaTeam Member asked a question 💭
Hard To Make Decision Wish Treatment
A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in